York Grady S, Churchman Richard, Woodard Beth, Wainright Charles, Rau-Foster Mary
Belmont University, Nashville, TN 37212, USA.
Am J Hosp Palliat Care. 2012 Mar;29(2):98-105. doi: 10.1177/1049909111409564. Epub 2011 May 23.
Invitations for free-text comments on surveys provide family members of hospice patients an opportunity to "tell" their story of the hospice experience and caregiver relationships during the last months of life. These comments are a rich source of data for understanding the complex interpersonal relationships that influence patient/family perceptions of both quality of care and quality of life. Analysis of 438 free-text comments provided by 243 hospice family members revealed 5 emergent caregiver relationship themes: knowledge, skills, and abilities; empathy and compassion; trust and acceptance; communication experience and time spent with caregiver. Findings support the value of free-text comments to explain or add depth to quality assessments, modify therapeutic interventions, and identify strategies for process improvement that advance hospice quality of care.
邀请临终关怀患者家属对调查问卷进行自由文本评论，为他们提供了一个“讲述”临终关怀体验以及生命最后几个月中照护者关系故事的机会。这些评论是丰富的数据来源，有助于理解影响患者/家属对护理质量和生活质量认知的复杂人际关系。对243名临终关怀患者家属提供的438条自由文本评论进行分析，揭示了5个照护者关系新出现的主题：知识、技能和能力；同理心和同情心；信任和接纳；沟通体验以及与照护者相处的时间。研究结果支持了自由文本评论在解释或深化质量评估、修改治疗干预措施以及确定促进临终关怀护理质量的流程改进策略方面的价值。
