Bialon Laura Nelson, Coke Sallie
Georgia College & State University, Milledgeville, 31204, USA.
Am J Hosp Palliat Care. 2012 May;29(3):210-8. doi: 10.1177/1049909111416494. Epub 2011 Jul 29.
The purpose of this qualitative study was to explore factors impacting caregiver burden and to explore possible solutions for family caregivers of terminally ill patients.
The majority of caregivers reported experiencing role conflict and inadequate stress management. Caregivers who worked outside the home, those who cared for two parents concurrently, those with the least amount of outside assistance, and caregivers who spent a longer period of time caregiving reported the highest levels of health problems and overall burden. Caregivers stated a need for more support from Hospice agencies, more education on caregiver training, and more public education about Hospice services. Faith played a positive role in alleviating caregiver burden.
Early identification, intervention, education and coordination of services may help to alleviate caregiver burden, which will improve quality of life for both patient and caregiver.
本定性研究的目的是探讨影响照顾者负担的因素，并为晚期患者的家庭照顾者探索可能的解决方案。
大多数照顾者报告经历了角色冲突和压力管理不足。外出工作的照顾者、同时照顾两位父母的照顾者、外部援助最少的照顾者以及照顾时间较长的照顾者报告的健康问题和总体负担水平最高。照顾者表示需要临终关怀机构提供更多支持、更多关于照顾者培训的教育以及更多关于临终关怀服务的公众教育。信仰在减轻照顾者负担方面发挥了积极作用。
早期识别、干预、教育和服务协调可能有助于减轻照顾者负担，这将改善患者和照顾者的生活质量。
