Department of Oral Biology, Indiana University School of Dentistry, Indianapolis, IN 46202, USA.
Health Educ Res. 2011 Aug;26(4):638-52. doi: 10.1093/her/cyr023. Epub 2011 May 23.
This paper examines how visual narratives may bridge relational understandings between people living with HIV/AIDS (PLWH/A) and future oral health care providers. Borrowing from literature in participatory visual methods such as photo elicitation and photovoice, we explored how PLWH/A visually choose to represent their daily lives. This study uses a grounded theory action-oriented approach in examining the thematic analysis of 257 photos and 12 related reflective participant journals. Ten collaborative themes emerged from the participants' analysis of their photos. These themes of social support, places, family, staff, group, recovery tools, transportation, friends, medications and food exhibited the indivisible characteristics of stressors and supports commonly found in accessing care. Further researcher reflections also found three meta-themes of stigmatization, maintenance of positive mental health and the development of pride in managing one's health. PLWH/A need to share these visual themes of supports and stressors with future dental providers so that they may hopefully acquire an understanding of chronic illness that is more personalized and relationship centered rather than merely numeric and detached.
本文探讨了视觉叙事如何在艾滋病病毒/艾滋病（HIV/AIDS）感染者和未来的口腔卫生保健提供者之间建立关系理解。借鉴参与式视觉方法的文献，例如照片引发和影像声音，我们探讨了 HIV/AIDS 感染者如何选择视觉上呈现他们的日常生活。本研究采用扎根理论行动导向方法，对 257 张照片和 12 份相关的反思性参与者期刊进行了主题分析。参与者对照片的分析中出现了十个协作主题。这些主题包括社会支持、地点、家庭、工作人员、群体、康复工具、交通、朋友、药物和食物，展示了在获取护理时常见的压力源和支持的不可分割特征。进一步的研究人员反思还发现了三个元主题：污名化、保持积极的心理健康和对管理自己健康的自豪感的发展。HIV/AIDS 感染者需要与未来的牙科提供者分享这些支持和压力的视觉主题，以便他们有望获得更个性化和以关系为中心的慢性疾病理解，而不仅仅是数字和分离的理解。
