Institute for Medical Ethics and History of Medicine, Ruhr-Universität Bochum, Bochum, Germany.
Hum Reprod. 2011 Sep;26(9):2382-91. doi: 10.1093/humrep/der207. Epub 2011 Jul 8.
The objective of this study was to investigate the views of patients and experts in Germany on information provision and decision-making in assisted reproduction treatment (ART).
Standard questionnaire techniques were used for interviewing Reproductive Physicians (n= 230), Psychosocial Counsellors (n = 66) and Patients (n = 1590). Descriptive data analyses and non-parametric tests for significance were performed.
Higher scores were assigned for information on the chances for treatment success and on direct, physical risks of fertility treatment than for information on the risks and burden of multiple pregnancies and on the emotional risks and burden associated with infertility treatment. Three-quarters (74%) of the Patients (P) reported that they had experienced an overwhelming desire for a child at some point during their treatment, and half (47%) stated that they had experienced the feeling of losing control over the situation. According to 25% of the Reproductive Physicians (RP) and 47% of the Psychosocial Counsellors (PC), patients are often or very often limited in their capacity to decide when to stop the treatment.
A significant number of patients in reproductive care in Germany are not well informed on all the aspects that are relevant for treatment decision-making, are overwhelmed by their desire for a child, lose control over the situation, and are limited in their capacity to end unsuccessful treatment. Information provision should be ensured and monitored during treatment by standardized safeguards. A strategy for stopping ART and embarking on alternative ways of coping with infertility should be installed from the outset of every treatment.
本研究旨在调查德国患者和专家对辅助生殖治疗（ART）中信息提供和决策的看法。
采用标准问卷技术对 230 名生殖医生、66 名心理社会咨询师和 1590 名患者进行访谈。进行描述性数据分析和非参数检验。
患者对治疗成功率和生育治疗直接身体风险的信息给予了更高的评分，而对多胎妊娠的风险和负担以及与不孕治疗相关的情绪风险和负担的信息给予了较低的评分。四分之三（74%）的患者（P）报告在治疗过程中的某个时刻曾有过强烈的生育愿望，有一半（47%）的患者表示曾有过无法控制局面的感觉。根据 25%的生殖医生（RP）和 47%的心理社会咨询师（PC）的说法，患者在决定何时停止治疗方面的能力经常受到限制。
德国生殖护理中的相当一部分患者对所有与治疗决策相关的方面了解不足，他们对孩子的渴望强烈，无法控制局面，并且在结束不成功的治疗方面能力有限。在治疗过程中应通过标准化的保障措施确保信息的提供和监测。在开始治疗时应制定停止 ART 并采取替代方式应对不孕的策略。
