Hamnes Bente, Hauge Mona I, Kjeken Ingvild, Hagen Kåre B
Hospital for Rheumatic Diseases, M. Grundvigsvei 6, 2609 Lillehammer, Norway.
Musculoskeletal Care. 2011 Dec;9(4):200-10. doi: 10.1002/msc.212. Epub 2011 Jul 20.
Self-management programmes (SMPs) have been developed to help patients with chronic rheumatic diseases to manage their health problems. Patients' expectations prior to treatment are important determinants of outcomes, and should therefore be identified, to ensure that interventions meet the participants' needs. The aim of the present study was to determine participant expectations with respect to a one-week inpatient SMP for those with fibromyalgia (FM) and rheumatoid arthritis (RA).
A qualitative study consisting of semi-structured interviews was used to explore the expectations of eight participants with FM and eight with RA. The data were analysed using thematic analysis.
The findings show that the participants expected the SMP to be a turning point towards a better future and to empower them to assume more responsibility for their own health and self-care. They also expected the SMP to facilitate acceptance, help them to gain new knowledge and be a forum in which to share their experience. Participants who were employed assumed that participation in the SMP would help to ensure that they would continue in their jobs.
This qualitative study indicated that identifying expectations prior to an SMP provides important information which has implications for the programme's implementation. Additional themes, such as acceptance of the illness and management of work, should also be included in the programmes and they should focus more on sharing experience.
自我管理项目（SMPs）已被开发出来，以帮助慢性风湿性疾病患者管理他们的健康问题。治疗前患者的期望是结果的重要决定因素，因此应该予以明确，以确保干预措施满足参与者的需求。本研究的目的是确定纤维肌痛（FM）和类风湿关节炎（RA）患者对为期一周的住院自我管理项目的期望。
采用一项包含半结构化访谈的定性研究来探究8名FM患者和8名RA患者的期望。使用主题分析法对数据进行分析。
研究结果表明，参与者期望自我管理项目成为迈向更美好未来的转折点，并使他们能够为自己的健康和自我护理承担更多责任。他们还期望自我管理项目能促进接纳，帮助他们获得新知识，并成为一个分享经验的平台。有工作的参与者认为参与自我管理项目将有助于确保他们能继续工作。
这项定性研究表明，在自我管理项目开展前明确期望能提供重要信息，这对项目的实施具有重要意义。其他主题，如对疾病的接纳和工作管理，也应纳入项目中，并且项目应更注重经验分享。
