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一项关于追踪技术使用的初步研究:对于痴呆症早期患者及其非专业照护者的可行性、可接受性和益处。

A pilot study on the use of tracking technology: feasibility, acceptability, and benefits for people in early stages of dementia and their informal caregivers.

机构信息

Program on Aging, Netherlands Institute of Mental Health and Addiction, Utrecht, The Netherlands.

出版信息

Aging Ment Health. 2012;16(1):127-34. doi: 10.1080/13607863.2011.596810. Epub 2011 Jul 25.

Abstract

OBJECTIVES

Caregivers and clinicians may be confronted with the dilemma whether to allow people in early stages of dementia to go outside independently with the risk of getting lost, or to limit their autonomy and mobility. Newly available technology may offer a solution. This pilot study is focused on the feasibility, acceptability, and effectiveness of a three-month use of Global Positioning System (GPS) by care receivers and caregivers.

METHOD

Numbers and percentages of participants with positive responses to self-report questions were calculated. Differences between the pre- and post-test scores of role-overload and worry were tested with paired t-tests and effect-sizes were calculated.

RESULTS

Of the 33 dyads of care receivers and caregivers, 28 remained in the study (dropout rate 15%). The majority of the caregivers was able to use the technology and integrate the use into their daily routines and would recommend the use of GPS. Almost half of the participants with dementia experienced more freedom and were less worried when they were outside unaccompanied, a quarter mentioned that they were more outside independently and a fifth that they had less conflicts with their caregiver after three months. Caregivers showed a trend to feel less worried, especially caregivers who could reach their relative using the telephone connection. No changes in caregivers' feelings of role-overload were found.

CONCLUSION

The GPS device used in this study seems to be promising for people in early stages of dementia and their informal caregivers. A next step is to carry out a randomized controlled trial.

摘要

目的

护理人员和临床医生可能面临这样的困境,即是否允许痴呆症早期患者在有迷路风险的情况下独立外出,还是限制他们的自主权和活动能力。新出现的技术可能提供了一个解决方案。本试点研究集中于使用全球定位系统(GPS)三个月对护理接受者和护理人员的可行性、可接受性和有效性。

方法

计算对自我报告问题有积极反应的参与者人数和百分比。使用配对 t 检验测试角色负担过重和担忧的预测试和后测试分数之间的差异,并计算效应大小。

结果

在 33 对护理接受者和护理人员中,有 28 对(辍学率为 15%)继续参与研究。大多数护理人员能够使用该技术并将其融入日常生活中,并会推荐使用 GPS。当他们无人陪伴外出时,近一半的痴呆症患者感到更自由,担忧更少,四分之一的人提到他们更独立地外出,五分之一的人在三个月后与护理人员的冲突减少。护理人员的担忧感呈下降趋势,特别是那些能够通过电话联系找到亲人的护理人员。护理人员的角色负担过重感没有变化。

结论

本研究中使用的 GPS 设备似乎对痴呆症早期患者及其非正规护理人员有很大的希望。下一步是进行随机对照试验。

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