Department of Medical Statistics and Epidemiology, Center for Health Information Research, School of Public Health, Sun Yat-sen University, Guangzhou 510080, the People's Republic of China.
Health Qual Life Outcomes. 2011 Aug 7;9:64. doi: 10.1186/1477-7525-9-64.
Health-related quality of life (HRQOL) has been recognized as an important health outcome measurement for pediatric patients. One of the most promising instruments in measuring pediatric HRQOL emerged in recent years is the Pediatric Quality of Life Inventory (PedsQL™). The PedsQL™ 3.0 Asthma Module, one of the PedsQL™disease-specific scales, was designed to measure HRQOL dimensions specifically tailored for pediatric asthma. The present study is aimed to evaluate the psychometric properties of the Chinese version of the PedsQL™ 3.0 Asthma Module.
The PedsQL™ 3.0 Asthma Module was translated into Chinese following the PedsQL™ Measurement Model Translation Methodology. The Chinese version scale was administered to 204 children with asthma and 337 parents of children with asthma from four Triple A hospitals. The psychometric properties were then evaluated.
The percentage of missing value for each item of the scale ranged from 0.00% to 8.31%. All child self-report subscales and parent proxy-report subscales approached or exceeded the minimum reliability standard of 0.70 for alpha coefficient, except 3 subscales of Young Child (aged 5-7) self-report (alphas ranging from 0.59 to 0.68). Test-retest reliability was satisfactory with intraclass correlation coefficients (ICCs) which exceeded the recommended standard of 0.80 in all subscales. Correlation coefficients between items and their hypothesized subscales were higher than those with other subscales. The PedsQL™ 3.0 Asthma Module distinguished between outpatients and inpatients. Patients with mild asthma reported higher scores than those with moderate/severe asthma in majority of subscales. The intercorrelations among the PedsQL™ 3.0 Asthma Module subscales and the PedsQL™ 4.0 Generic Core Scales were in medium to large effect size. The child self-report scores were consistent with the parent proxy-report scores.
The Chinese version of the PedsQL™ 3.0 Asthma Module has acceptable psychometric properties, except the internal consistency reliability for Young Child (aged 5-7) self-report. Further studies should be focused on testing responsiveness of the Chinese version scale in longitudinal studies, evaluating the reliability and validity of the scale for the patients with severe asthma or teens independently, and assessing HRQOL of children with asthma in other areas.
健康相关生活质量(HRQOL)已被认为是儿科患者的重要健康结果衡量标准。近年来,测量儿科 HRQOL 最有前途的工具之一是儿科生活质量问卷(PedsQL™)。PedsQL™3.0 哮喘模块是 PedsQL™疾病特异性量表之一,旨在专门针对儿科哮喘量身定制测量 HRQOL 维度。本研究旨在评估中文版 PedsQL™3.0 哮喘模块的心理测量特性。
根据 PedsQL™测量模型翻译方法,将 PedsQL™3.0 哮喘模块翻译成中文。从四家三甲医院招募了 204 名哮喘患儿和 337 名患儿家长,对中文版量表进行了评估。
各项目的缺失率百分比范围为 0.00%至 8.31%。除幼儿(5-7 岁)自我报告的 3 个分量表(alpha 系数范围为 0.59 至 0.68)外,所有儿童自我报告分量表和家长代理报告分量表均接近或超过 0.70 的 alpha 系数最低可靠性标准。除所有分量表的内类相关系数(ICC)均超过 0.80 的推荐标准外,重测信度均令人满意。各项目与假设分量表的相关系数高于与其他分量表的相关系数。PedsQL™3.0 哮喘模块可区分门诊患者和住院患者。在大多数分量表中,轻度哮喘患者的报告得分高于中度/重度哮喘患者。PedsQL™3.0 哮喘模块分量表与 PedsQL™4.0 通用核心量表之间的相互关联处于中等至较大的效应大小。儿童自我报告得分与家长代理报告得分一致。
中文版 PedsQL™3.0 哮喘模块具有可接受的心理测量特性,除幼儿(5-7 岁)自我报告的内部一致性可靠性外。进一步的研究应集中在纵向研究中测试中文版量表的反应性,独立评估该量表对严重哮喘或青少年患者的可靠性和有效性,以及评估其他地区哮喘儿童的 HRQOL。