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儿童癌症幸存者神经心理学建议的家长跟进情况。

Parental follow-through of neuropsychological recommendations for childhood-cancer survivors.

作者信息

Quillen Joanne, Crawford Emily, Plummer Barbara, Bradley Holli, Glidden Rochelle

机构信息

Nemours/Alfred I. duPont Hospital for Children, Wilmington, DE 19803, USA.

出版信息

J Pediatr Oncol Nurs. 2011 Sep-Oct;28(5):306-10. doi: 10.1177/1043454211418668. Epub 2011 Aug 15.

DOI:10.1177/1043454211418668
PMID:21844242
Abstract

In the past 40 years, outcomes for children with cancer have changed considerably. The survival rate has increased to approximately 80%. With success and survival come detriments that often occur over time called late effects of cancer treatment. When the central nervous system is treated with radiation or chemotherapy, we often see impairment to the senses, cognition, and learning. For children who receive central nervous system treatment, follow-up with a neuropsychological evaluation is an excellent tool to evaluate learning and behavior in relationship to a child's brain. The authors' research examined neuropsychological evaluations for common themes related to diagnosis, age, sex, and/or treatment received, and the authors investigated whether the families implemented recommendations suggested in the neuropsychological evaluation. Less than 50% of recommendations from evaluations were implemented. The authors found that families need ongoing support and knowledge to implement the neuropsychological testing recommendations. Families need assistance navigating the school system and advocating for their child's needs. Continued surveillance of the child's academic needs by both the psychology and oncology teams is essential for long-term success.

摘要

在过去40年里,癌症患儿的治疗结果发生了显著变化。生存率已提高到约80%。随着治疗的成功和患儿的存活,一些不利影响会随着时间推移而出现,这些被称为癌症治疗的晚期效应。当对中枢神经系统进行放疗或化疗时,我们常常会看到患儿的感官、认知和学习能力受损。对于接受中枢神经系统治疗的儿童,进行神经心理学评估是评估其学习和行为与大脑关系的绝佳工具。作者的研究检查了神经心理学评估中与诊断、年龄、性别和/或所接受治疗相关的常见主题,并且作者调查了家庭是否执行了神经心理学评估中提出的建议。评估建议的执行率不到50%。作者发现,家庭需要持续的支持和知识来执行神经心理学测试建议。家庭在应对学校系统以及为孩子的需求争取权益方面需要帮助。心理学团队和肿瘤学团队持续监测孩子的学业需求对长期成功至关重要。

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