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波兰版多发性硬化症国际生活质量问卷(MusiQoL)的验证分析。

Validation analysis of the Polish version of the Multiple Sclerosis International Quality of Life Questionnaire (MusiQoL).

机构信息

Katedra i Klinika Neurologii Uniwersytetu Medycznego w Lublinie, ul. Jaczewskiego 8, 20-954 Lublin.

出版信息

Neurol Neurochir Pol. 2011 May-Jun;45(3):235-44. doi: 10.1016/s0028-3843(14)60076-1.

Abstract

BACKGROUND AND PURPOSE

The aim of this study was to perform a validation analysis of the Polish adaptation of the Multiple Sclerosis International Quality of Life Questionnaire, MusiQoL.

MATERIAL AND METHODS

Validation analysis included the translation of the original English version into Polish according to translation principles and the analysis of convergent validity, internal reliability and reproducibility of the Polish version of MusiQoL. The study included 150 randomly chosen patients (109 women and 41 men) with definite multiple sclerosis (MS) diagnosed according to McDonald criteria. Mean age of patients was 41 ± 10 years and mean disease duration was 11.7 ± 7.2 years. The patients completed the examined MusiQoL, the Functional Assessment of Multiple Sclerosis (FAMS) and the Multiple Sclerosis Impact Scale (MSIS-29). Data regarding sociodemographic status and MS history were collected. The disability of the patients was assessed according to the Expanded Disability Status Scale (EDSS). The examination was repeated after 28 ± 4 days.

RESULTS

The internal reliability, convergent validity and reproducibility of MusiQoL were satisfactory. The dimensions of the scale exhibited high internal consistency (Cronbach's alpha from 0.67 to 0.90). The MusiQoL correlated with FAMS (positive correlations), EDSS and MSIS-29 (negatively).

CONCLUSIONS

Psychometric-statistical analysis showed that the Polish version of MusiQoL is a valuable measure to examine the health-related quality of life of Polish MS patients.

摘要

背景与目的

本研究旨在对多发性硬化症国际生活质量问卷(MusiQoL)的波兰文译本进行验证性分析。

材料与方法

验证性分析包括根据翻译原则将原始英文版翻译成波兰文,并分析波兰文版 MusiQoL 的收敛效度、内部信度和可重复性。该研究纳入了 150 名随机选择的多发性硬化症患者(109 名女性和 41 名男性),这些患者根据麦克唐纳标准确诊为多发性硬化症。患者的平均年龄为 41 ± 10 岁,平均病程为 11.7 ± 7.2 年。患者完成了评估的 MusiQoL、多发性硬化症功能评估量表(FAMS)和多发性硬化症影响量表(MSIS-29)。收集了患者的社会人口统计学状况和多发性硬化症病史相关数据。根据扩展残疾状况量表(EDSS)评估患者的残疾程度。检查在 28 ± 4 天后重复进行。

结果

MusiQoL 的内部信度、收敛效度和可重复性令人满意。量表的各个维度表现出较高的内部一致性(Cronbach's alpha 从 0.67 到 0.90)。MusiQoL 与 FAMS (正相关)、EDSS 和 MSIS-29 (负相关)相关。

结论

心理统计学分析表明,波兰文版 MusiQoL 是评估波兰多发性硬化症患者健康相关生活质量的一种有价值的测量工具。

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