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儿童透析患者的生活质量。

Quality of life in children on dialysis.

机构信息

Discipline of Nephrology, Department of Medicine, Federal University of São Paulo, Escola Paulista de Medicina, Rua Botucatu, 740, São Paulo, São Paulo CEP 04023-900, Brazil.

出版信息

Int Urol Nephrol. 2012 Oct;44(5):1515-9. doi: 10.1007/s11255-011-0047-2. Epub 2011 Aug 26.

Abstract

INTRODUCTION

In recent years, the survival of patients with end stage renal disease (ESRD) has increased but few studies have assessed the quality of life in children on dialysis. The aim of the present cross-sectional study was to analyze the quality of life in this pediatric population and compare it with healthy controls using the Autoquestionnaire Qualité de Vie Enfant Image.

SUBJECTS

Thirty-three children on dialysis paired for gender, age, and social level with 33 healthy children.

RESULTS

A significant difference was observed between the groups regarding the question on the practicing of sports. For this question, 29/33 healthy children reported to be very satisfied, while only 17/33 out of the ESRD group stated likewise. When asked about satisfaction of the children at the table with the family, 23/33 of the controls and 16/33 of the ESRD group reported to be very satisfied, showing a trend toward a significant difference (P = 0.059). No differences were observed for the remaining questions. We conclude that ESRD was linked to lower perception of quality of life in leisure aspects (sports) and a trend regarding functional issues (meal at the table).

摘要

简介

近年来,终末期肾病(ESRD)患者的生存率有所提高,但很少有研究评估透析儿童的生活质量。本横断面研究的目的是使用 Autoquestionnaire Qualité de Vie Enfant Image 分析该儿科人群的生活质量,并将其与健康对照组进行比较。

受试者

33 名接受透析的儿童按性别、年龄和社会水平与 33 名健康儿童配对。

结果

两组在运动实践问题上存在显著差异。对于这个问题,33 名健康儿童中有 29 名表示非常满意,而 ESRD 组中只有 17 名表示满意。在询问儿童对家庭用餐的满意度时,23/33 名对照组和 16/33 名 ESRD 组表示非常满意,表现出显著差异的趋势(P=0.059)。其余问题无差异。我们得出结论,ESRD 与休闲方面(运动)生活质量感知降低以及功能问题(用餐)方面的趋势有关。

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