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残疾儿童兄弟姐妹群体干预:临床环境中的初步研究。

Group intervention for siblings of children with disabilities: a pilot study in a clinical setting.

机构信息

Habilitation and Assistive Technology Services, Uppsala County Council, Sweden.

出版信息

Disabil Rehabil. 2012;34(1):69-75. doi: 10.3109/09638288.2011.587087. Epub 2011 Aug 30.

DOI:10.3109/09638288.2011.587087
PMID:21877903
Abstract

PURPOSE

To study the effectiveness of a group intervention in a clinical setting designed to increase knowledge of disability and improve sibling relationship among siblings of children with disabilities.

METHOD

A self-selected sample of 54 younger and older siblings with typical development (ages 8-12 years) of children with attention deficit hyperactivity disorder (ADHD) (9), Asperger syndrome (7), autistic disorder (13), physical disability (8) and intellectual disability (17) participated in collateral sibling groups. The Sibling Knowledge Interview (SKI) and Sibling Relationship Questionnaire (SRQ) were administered pre- and post-intervention.

RESULTS

SKI scores increased (p < 0.001) from pre- to post-intervention when merged diagnostic groups were compared. Comparisons of SRQ pre- and post-intervention scores across diagnostic sibling groups showed significantly different (p < 0.05) score patterns.

CONCLUSIONS

The results were encouraging and contribute to further development of interventions meeting the needs of siblings of children with disabilities. In view of the limited empirical research on group interventions for siblings of children with disabilities future work is needed to investigate the effectiveness of such interventions. Particular attention should be given to siblings of children with autism and siblings of children with intellectual disability.

摘要

目的

研究在临床环境中开展小组干预,以增加残疾知识并改善残疾儿童的兄弟姐妹关系。

方法

选择有典型发育(8-12 岁)的儿童的兄弟姐妹(9 名注意力缺陷多动障碍(ADHD),7 名阿斯伯格综合征,13 名自闭症,8 名身体残疾和 17 名智力残疾儿童)的兄弟姐妹参加共病兄弟姐妹小组。在干预前后进行了兄弟姐妹知识访谈(SKI)和兄弟姐妹关系问卷(SRQ)。

结果

合并诊断组比较时,SKI 分数从干预前到干预后均增加(p<0.001)。对不同诊断兄弟姐妹组的 SRQ 干预前后得分进行比较,发现得分模式存在显著差异(p<0.05)。

结论

结果令人鼓舞,并为满足残疾儿童兄弟姐妹需求的干预措施的进一步发展做出了贡献。鉴于针对残疾儿童的兄弟姐妹的小组干预的有限实证研究,未来需要研究此类干预的有效性。应特别关注自闭症儿童的兄弟姐妹和智力残疾儿童的兄弟姐妹。

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