College of Nursing, The Catholic University of Korea, Seoul 03722, Korea.
Division of Pediatric Cardiology, Department of Pediatrics, College of Medicine, Yonsei University, Seoul 03722, Korea.
Int J Environ Res Public Health. 2021 Mar 8;18(5):2698. doi: 10.3390/ijerph18052698.
Adolescents with congenital heart disease (CHD) continuously need family support because of their repeated follow ups, treatments, and complications. However, sibling relationships have not been well studied among adolescents with CHD. The purpose of the present study was to explore the relationships between adolescents with CHD and their siblings, and to examine these relationships according to birth order and age. Adolescents aged from 13 to 21 years who had been diagnosed with CHD and had siblings were included as participants. The Sibling Relationship Questionnaire (SRQ) was used. The SRQ consists of four factors: warmth/closeness, conflict, relative power/status, and rivalry. A univariate general linear model was conducted to identify the sibling relationship factors according to birth order and sibling ages. The score for relative power/status of participants who were the eldest sibling was higher than that of younger siblings. The score for rivalry increased as sibling age increased. Therefore, healthcare providers need to investigate sibling relationships and to explain the importance of self-identity and power balance between adolescents with CHD and their siblings to parents.
先天性心脏病（CHD）青少年由于需要反复随访、治疗和应对并发症，因此持续需要家庭支持。然而，CHD 青少年之间的兄弟姐妹关系尚未得到充分研究。本研究旨在探讨 CHD 青少年与兄弟姐妹之间的关系，并根据出生顺序和年龄来检查这些关系。参与者为年龄在 13 至 21 岁之间、被诊断患有 CHD 且有兄弟姐妹的青少年。使用了兄弟姐妹关系问卷（SRQ）。SRQ 由四个因素组成：温暖/亲密、冲突、相对权力/地位和竞争。采用单变量一般线性模型根据出生顺序和兄弟姐妹年龄确定兄弟姐妹关系因素。作为老大的参与者在相对权力/地位方面的得分高于弟弟妹妹。随着兄弟姐妹年龄的增长，竞争得分也随之增加。因此，医疗保健提供者需要调查兄弟姐妹关系，并向父母解释 CHD 青少年及其兄弟姐妹之间自我认同和权力平衡的重要性。
