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从患者角度看德国酒渣鼻的医疗质量:2009 年国家医疗研究 Rosareal 的结果。

Quality of health care of rosacea in Germany from the patient's perspective: results of the national health care study Rosareal 2009.

机构信息

German Center for Health Services Research in Dermatology, CVderm, Institute for Health Services Research in Dermatology and Nursing, University Medical Center Hamburg-Eppendorf, Hamburg, Germany. a.langenbruch @ uke.uni-hamburg.de

出版信息

Dermatology. 2011;223(2):124-30. doi: 10.1159/000330555. Epub 2011 Sep 5.

DOI:10.1159/000330555
PMID:21893958
Abstract

OBJECTIVES

To obtain reliable data on quality of care of rosacea and to compare care indicators with those found in atopic dermatitis and psoriasis.

PATIENTS AND METHODS

In this cross-sectional study, clinical history, health-related quality of life (HrQoL), medication and treatment benefit of patients with rosacea were assessed by standardized questionnaires. Data were compared to patients with atopic dermatitis and psoriasis.

RESULTS

Almost all 475 participants (96.4%) had received topical therapy. 24% had used cortisone ointments. The mean Dermatology Life Quality Index (DLQI) was 4.3 ± 4.6 (atopic dermatitis: 8.5 ± 6.0, psoriasis: 6.7 ± 6.2). The Patient Benefit Index (patient-defined therapeutic benefit) was 1.9 ± 1.2 (psoriasis: 2.3 ± 1.1, atopic dermatitis: 2.1 ± 1.1).

CONCLUSIONS

Only a small proportion of the rosacea patients had substantial impairments in HrQoL. Overall, their burden appears to be lower than in patients with atopic dermatitis or psoriasis. However, the lower therapeutic benefit and the high proportion of topical steroid use indicate a need for optimized therapy.

摘要

目的

获取酒渣鼻护理质量的可靠数据,并将护理指标与特应性皮炎和银屑病的护理指标进行比较。

患者和方法

在这项横断面研究中,通过标准化问卷评估了酒渣鼻患者的临床病史、与健康相关的生活质量(HrQoL)、药物治疗和治疗获益。将数据与特应性皮炎和银屑病患者进行了比较。

结果

几乎所有 475 名参与者(96.4%)都接受了局部治疗。24%的患者使用过皮质类固醇软膏。平均皮肤病生活质量指数(DLQI)为 4.3±4.6(特应性皮炎:8.5±6.0,银屑病:6.7±6.2)。患者获益指数(患者定义的治疗获益)为 1.9±1.2(银屑病:2.3±1.1,特应性皮炎:2.1±1.1)。

结论

只有一小部分酒渣鼻患者的 HrQoL 受到严重损害。总体而言,他们的负担似乎低于特应性皮炎或银屑病患者。然而,较低的治疗获益和较高的局部类固醇使用比例表明需要优化治疗。

相似文献

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Quality of health care of rosacea in Germany from the patient's perspective: results of the national health care study Rosareal 2009.从患者角度看德国酒渣鼻的医疗质量:2009 年国家医疗研究 Rosareal 的结果。
Dermatology. 2011;223(2):124-30. doi: 10.1159/000330555. Epub 2011 Sep 5.
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Quality of psoriasis care in Germany--results of the national study PsoHealth 2007.德国银屑病护理质量——2007年全国性研究PsoHealth的结果
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引用本文的文献

1
Health-related Quality of Life of Patients with Rosacea: A Systematic Review and Meta-analysis of Real-world Data.玫瑰痤疮患者的健康相关生活质量:基于真实世界数据的系统评价和荟萃分析。
Acta Derm Venereol. 2024 Jun 25;104:adv40053. doi: 10.2340/actadv.v104.40053.
2
Development of a Specific Variant of Patient Benefit Index (PBI) Assessing Patient Needs, Goals and Benefits in Rosacea Treatment.开发一种特定变体的患者获益指数(PBI),用于评估酒渣鼻治疗中的患者需求、目标和获益。
Patient Prefer Adherence. 2023 Jun 1;17:1335-1345. doi: 10.2147/PPA.S378724. eCollection 2023.