Fondazione Maruzza Lefebvre D'Ovidio Onlus, Rome, Italy.
Ann Ist Super Sanita. 2011;47(3):273-7. doi: 10.4415/ANN_11_03_06.
Recent progress in neonatal care have significantly improved the prognosis and chances of survival of critically ill or extremely preterm neonates and have modified the limits of viability. However, in some circumstances, when the child's death can only be briefly postponed at the price of severe suffering, or when survival is associated with severe disabilities and an intolerable life for the child and his/her parents, the application of the full armamentarium of modern neonatal intensive care may not be appropriate. In such circumstances the limitation of intensive treatments (withholding or withdrawing) and shift towards palliative care, can represent a more humane and reasonable alternative. This article examines and discusses the ethical principles underlying such difficult decisions, the most frequent situations in which these decisions may be considered, the role of parents in the decisional process, and the opinions and behaviours of neonatologists of several European neonatal intensive units as reported by the EURONIC study.
新生儿护理的最新进展显著改善了患有重病或极早产儿的患儿的预后和生存机会,并改变了可存活的极限。然而,在某些情况下,当孩子的死亡只能通过承受严重痛苦来短暂推迟,或者当生存与严重残疾以及孩子和其父母无法承受的生活相关联时,应用现代新生儿重症监护的全部手段可能并不合适。在这种情况下,限制强化治疗(保留或停止)并转向姑息治疗,可能是一种更人道和合理的选择。本文探讨和讨论了这些困难决策所依据的伦理原则、这些决策可能被考虑的最常见情况、父母在决策过程中的作用,以及 EURONIC 研究报告的几家欧洲新生儿重症监护病房的新生儿科医生的意见和行为。