生物样本库研究：谁能从个人同意中受益？ - Suppr

Suppr

超能文献

Biobank research: who benefits from individual consent?

作者信息

Stjernschantz Forsberg Joanna, Hansson Mats G, Eriksson Stefan

机构信息

Centre for Research Ethics and Bioethics, Uppsala University, Box 564, S-751 22 Uppsala, Sweden.

出版信息

BMJ. 2011 Oct 4;343:d5647. doi: 10.1136/bmj.d5647.

DOI:10.1136/bmj.d5647

PMID:21972296

Abstract

摘要

相似文献

Biobank research: who benefits from individual consent?

BMJ. 2011 Oct 4;343:d5647. doi: 10.1136/bmj.d5647.

[Imprecise about biobank legislation].

Tidsskr Nor Laegeforen. 2007 May 31;127(11):1536-7; author reply 1537.

[The new biobank law accepted: a unique chance of improvement].

Lakartidningen. 2002 Jun 13;99(24):2774-6.

Building on relationships of trust in biobank research.

J Med Ethics. 2005 Jul;31(7):415-8. doi: 10.1136/jme.2004.009456.

Ethical framework for previously collected biobank samples.

Nat Biotechnol. 2007 Sep;25(9):973-6. doi: 10.1038/nbt0907-973b.

Alternative consent models for biobanks: the new Spanish law on biomedical research.

Bioethics. 2008 Sep;22(8):440-7. doi: 10.1111/j.1467-8519.2008.00673.x. Epub 2008 Jul 17.

An empirical reappraisal of public trust in biobanking research: rethinking restrictive consent requirements.

J Law Med. 2009 Aug;17(1):119-32.

The need to downregulate: a minimal ethical framework for biobank research.

Methods Mol Biol. 2011;675:39-59. doi: 10.1007/978-1-59745-423-0_2.

[Biobanks and the new law. Renew informed consent with moderation for tests which are to be used for new purposes].

Lakartidningen. 2003 Dec 4;100(49):4106-9.

Biobanks for non-clinical purposes and the new law on forensic biobanks: does the Italian context protect the rights of minors?

J Med Ethics. 2010 Dec;36(12):775-8. doi: 10.1136/jme.2010.037606. Epub 2010 Nov 8.

引用本文的文献

Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature.

Eur J Hum Genet. 2024 Jan;32(1):21-30. doi: 10.1038/s41431-023-01471-0. Epub 2023 Oct 17.

Consent requirements for research with human tissue: Swiss ethics committee members disagree.

BMC Med Ethics. 2018 Nov 26;19(1):93. doi: 10.1186/s12910-018-0331-0.

"As Long as You Ask": A Qualitative Study of Biobanking Consent-Oncology Patients' and Health Care Professionals' Attitudes, Motivations, and Experiences-the B-PPAE Study.

Oncologist. 2019 Jun;24(6):844-856. doi: 10.1634/theoncologist.2018-0233. Epub 2018 Nov 9.

A survey of patient perspectives on the research use of health information and biospecimens.

BMC Med Ethics. 2016 Aug 15;17(1):48. doi: 10.1186/s12910-016-0130-4.

Differences in preferences for models of consent for biobanks between Black and White women.

J Community Genet. 2016 Jan;7(1):41-9. doi: 10.1007/s12687-015-0248-y. Epub 2015 Aug 25.

Increasing value and reducing waste in biomedical research regulation and management.

Lancet. 2014 Jan 11;383(9912):176-85. doi: 10.1016/S0140-6736(13)62297-7. Epub 2014 Jan 8.

Biobanking in a constantly developing medical world.

ScientificWorldJournal. 2013 Sep 23;2013:343275. doi: 10.1155/2013/343275. eCollection 2013.

Biobanking: The Melding of Research with Clinical Care.

Curr Genet Med Rep. 2013 Jun;1(2):122-128. doi: 10.1007/s40142-013-0014-6.

Inclusion of residual tissue in biobanks: opt-in or opt-out?

PLoS Biol. 2012;10(8):e1001373. doi: 10.1371/journal.pbio.1001373. Epub 2012 Aug 7.

文献AI研究员

20分钟写一篇综述，助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型，支持多种主流文档格式。

立即体验

Biobank research: who benefits from individual consent?

作者信息

Stjernschantz Forsberg Joanna, Hansson Mats G, Eriksson Stefan

机构信息

Centre for Research Ethics and Bioethics, Uppsala University, Box 564, S-751 22 Uppsala, Sweden.

出版信息

BMJ. 2011 Oct 4;343:d5647. doi: 10.1136/bmj.d5647.

DOI:10.1136/bmj.d5647

PMID:21972296

Abstract

摘要

相似文献

Biobank research: who benefits from individual consent?

BMJ. 2011 Oct 4;343:d5647. doi: 10.1136/bmj.d5647.

[Imprecise about biobank legislation].

Tidsskr Nor Laegeforen. 2007 May 31;127(11):1536-7; author reply 1537.

[The new biobank law accepted: a unique chance of improvement].

Lakartidningen. 2002 Jun 13;99(24):2774-6.

Building on relationships of trust in biobank research.

J Med Ethics. 2005 Jul;31(7):415-8. doi: 10.1136/jme.2004.009456.

Ethical framework for previously collected biobank samples.

Nat Biotechnol. 2007 Sep;25(9):973-6. doi: 10.1038/nbt0907-973b.

Alternative consent models for biobanks: the new Spanish law on biomedical research.

Bioethics. 2008 Sep;22(8):440-7. doi: 10.1111/j.1467-8519.2008.00673.x. Epub 2008 Jul 17.

An empirical reappraisal of public trust in biobanking research: rethinking restrictive consent requirements.

J Law Med. 2009 Aug;17(1):119-32.

The need to downregulate: a minimal ethical framework for biobank research.

Methods Mol Biol. 2011;675:39-59. doi: 10.1007/978-1-59745-423-0_2.

[Biobanks and the new law. Renew informed consent with moderation for tests which are to be used for new purposes].

Lakartidningen. 2003 Dec 4;100(49):4106-9.

Biobanks for non-clinical purposes and the new law on forensic biobanks: does the Italian context protect the rights of minors?

J Med Ethics. 2010 Dec;36(12):775-8. doi: 10.1136/jme.2010.037606. Epub 2010 Nov 8.

引用本文的文献

Specific measures for data-intensive health research without consent: a systematic review of soft law instruments and academic literature.

Eur J Hum Genet. 2024 Jan;32(1):21-30. doi: 10.1038/s41431-023-01471-0. Epub 2023 Oct 17.

Consent requirements for research with human tissue: Swiss ethics committee members disagree.

BMC Med Ethics. 2018 Nov 26;19(1):93. doi: 10.1186/s12910-018-0331-0.

"As Long as You Ask": A Qualitative Study of Biobanking Consent-Oncology Patients' and Health Care Professionals' Attitudes, Motivations, and Experiences-the B-PPAE Study.

Oncologist. 2019 Jun;24(6):844-856. doi: 10.1634/theoncologist.2018-0233. Epub 2018 Nov 9.

A survey of patient perspectives on the research use of health information and biospecimens.

BMC Med Ethics. 2016 Aug 15;17(1):48. doi: 10.1186/s12910-016-0130-4.

Differences in preferences for models of consent for biobanks between Black and White women.

J Community Genet. 2016 Jan;7(1):41-9. doi: 10.1007/s12687-015-0248-y. Epub 2015 Aug 25.

Increasing value and reducing waste in biomedical research regulation and management.

Lancet. 2014 Jan 11;383(9912):176-85. doi: 10.1016/S0140-6736(13)62297-7. Epub 2014 Jan 8.

Biobanking in a constantly developing medical world.

ScientificWorldJournal. 2013 Sep 23;2013:343275. doi: 10.1155/2013/343275. eCollection 2013.

Biobanking: The Melding of Research with Clinical Care.

Curr Genet Med Rep. 2013 Jun;1(2):122-128. doi: 10.1007/s40142-013-0014-6.

Inclusion of residual tissue in biobanks: opt-in or opt-out?

PLoS Biol. 2012;10(8):e1001373. doi: 10.1371/journal.pbio.1001373. Epub 2012 Aug 7.