Department of Public Health, Institute of Tropical Medicine, Nationalestraat 155, Antwerp, 2000, Belgium.
Global Health. 2011 Oct 10;7:38. doi: 10.1186/1744-8603-7-38.
The growing caseload caused by patients with chronic life-long conditions leads to increased needs for health care providers and rising costs of health services, resulting in a heavy burden on health systems, populations and individuals. The professionalised health care for chronic patients common in high income countries is very labour-intensive and expensive. Moreover, the outcomes are often poor. In low-income countries, the scarce resources and the lack of quality and continuity of health care result in high health care expenditure and very poor health outcomes. The current proposals to improve care for chronic patients in low-income countries are still very much provider-centred.The aim of this paper is to show that present provider-centred models of chronic care are not adequate and to propose 'full self-management' as an alternative for low-income countries, facilitated by expert patient networks and smart phone technology.
People with chronic life-long conditions need to 'rebalance' their life in order to combine the needs related to their chronic condition with other elements of their life. They have a crucial role in the management of their condition and the opportunity to gain knowledge and expertise in their condition and its management. Therefore, people with chronic life-long conditions should be empowered so that they become the centre of management of their condition. In full self-management, patients become the hub of management of their own care and take full responsibility for their condition, supported by peers, professionals and information and communication tools.We will elaborate on two current trends that can enhance the capacity for self-management and coping: the emergence of peer support and expert-patient networks and the development and distribution of smart phone technology both drastically expand the possibilities for full self-management.
Present provider-centred models of care for people with chronic life-long conditions are not adequate and we propose 'full self-management' as an alternative for low-income countries, supported by expert networks and smart phone technology.
慢性病患者不断增加,导致对医疗保健提供者的需求增加,医疗服务成本上升,从而给卫生系统、人群和个人带来沉重负担。在高收入国家,慢性病患者的专业医疗服务非常耗费人力和资金,而且效果往往不佳。在低收入国家,稀缺的资源以及医疗保健的质量和连续性的缺乏导致医疗保健支出高昂,健康状况极差。目前改善低收入国家慢性病患者护理的建议仍然非常以提供者为中心。本文旨在表明,目前以提供者为中心的慢性病护理模式并不充分,并提议以“全面自我管理”作为替代方案,辅以专家患者网络和智能手机技术。
患有慢性终身疾病的人需要“重新平衡”他们的生活,以便将与慢性疾病相关的需求与生活的其他方面结合起来。他们在管理自己的病情方面发挥着至关重要的作用,并有机会获得有关病情及其管理的知识和专长。因此,应该赋予慢性病患者权力,使他们成为病情管理的中心。在全面自我管理中,患者成为自身护理管理的核心,在同行、专业人员以及信息和通信工具的支持下,对自己的病情承担全部责任。我们将详细阐述当前可以增强自我管理和应对能力的两种趋势:同伴支持和专家患者网络的出现,以及智能手机技术的发展和普及,这两种趋势都极大地扩大了全面自我管理的可能性。
目前针对慢性病患者的以提供者为中心的护理模式并不充分,我们提议以“全面自我管理”作为替代方案,辅以专家网络和智能手机技术,以支持低收入国家。