Jenerette Coretta M, Brewer Cheryl, Leak Ashley N
School of Nursing, The University of North Carolina at Chapel Hill, Campus Box 7460, Chapel Hill, NC 27599-7460, USA.
Nurs Res Pract. 2011;2011:270594. doi: 10.1155/2011/270594. Epub 2011 Aug 15.
Self-care management is an important part of living with a chronic illness. Sickle cell disease (SCD) is a chronic disease with acute, painful exacerbations that often results in a shortened life expectancy. Some middle-aged and older adults with SCD lived with the disease prior to having a diagnosis and without modern advances. The purpose of this study is to share the self-care recommendations of middle-aged and older adults with SCD. Using descriptive qualitative methods, data were gathered through semistructured interviews from 11 individuals living with SCD, including 6 women and 5 men. Self-care recommendations themes included physiological, psychological, and provider-related. The self-care recommendations may be seen as an additional resource or "words of wisdom" for younger adults with SCD who can use the recommendations to better manage their own disease. Additionally, providers may be able to use these recommendations to inform their practice.
自我护理管理是慢性病患者生活的重要组成部分。镰状细胞病（SCD）是一种伴有急性疼痛加重的慢性疾病，常导致预期寿命缩短。一些患有SCD的中老年成年人在被诊断之前就已患有该疾病，且当时没有现代医学进展。本研究的目的是分享患有SCD的中老年成年人的自我护理建议。采用描述性定性方法，通过对11名SCD患者（包括6名女性和5名男性）进行半结构化访谈收集数据。自我护理建议主题包括生理、心理和与医疗服务提供者相关的方面。这些自我护理建议可被视为患有SCD的年轻人的额外资源或“智慧之言”，他们可以利用这些建议更好地管理自己的疾病。此外，医疗服务提供者或许能够利用这些建议来指导他们的实践。
