Department of Adult Health Nursing, Indiana University School of Nursing, Indianapolis, IN, USA.
J Neurosci Nurs. 2011 Dec;43(6):317-28. doi: 10.1097/JNN.0b013e318234e9dd.
Persons with mild cognitive impairment (PwMCI) are at greater risk for developing Alzheimer disease and experience various difficulties that decrease their quality of life. Very few interventions focus on helping PwMCI improve or maintain functional performance and enhance quality of life through meaningful activity engagement. The purpose of the study was to explore PwMCI and their spouses' perspectives on the content validity, usefulness, and acceptability of the Daily Enhancement of Meaningful Activity (DEMA) program, which included 6 biweekly face-to-face sessions between session assignments and a self-management tool kit of written educational handouts. Nine PwMCI-care partner dyads participated in 3 focus groups (PwMCI alone, spouses alone, and couples) to capture their perspectives on DEMA. The transcribed focus group data were analyzed through content analysis. The three groups provided support for content validity and acceptability of the program, and they suggested additional content areas important to couples experiencing MCI. They also attested to the usefulness of the tool kit and gave suggestions for its further improvement. The findings provide evidence of the content validity and acceptability of the DEMA program. A pilot study to assess feasibility and preliminary efficacy of the DEMA on health-related outcomes is the recommended next research step for this program.
轻度认知障碍(MCI)患者发展为阿尔茨海默病的风险更高,并且经历各种降低生活质量的困难。很少有干预措施专注于通过有意义的活动参与来帮助 MCI 患者改善或维持功能表现并提高生活质量。本研究的目的是探讨 MCI 患者及其配偶对每日增强有意义活动(DEMA)计划的内容有效性、有用性和可接受性的看法,该计划包括在任务之间进行 6 次双周面对面会议和一个书面教育手册的自我管理工具包。9 对 MCI 患者-照顾者对参加了 3 个焦点小组(仅 MCI 患者、仅配偶和夫妻),以捕捉他们对 DEMA 的看法。转录的焦点小组数据通过内容分析进行分析。这三个小组对该计划的内容有效性和可接受性提供了支持,并且他们还提出了对夫妻经历 MCI 很重要的其他内容领域。他们还证明了工具包的有用性,并提出了进一步改进的建议。这些发现为 DEMA 计划的内容有效性和可接受性提供了证据。对该计划进行健康相关结果的可行性和初步疗效的试点研究是下一步推荐的研究步骤。