脆性 X 综合征成年患者和自闭症谱系障碍成年患者的母亲日常健康症状。
Daily health symptoms of mothers of adolescents and adults with fragile x syndrome and mothers of adolescents and adults with autism spectrum disorder.
机构信息
Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI, 53705, USA.
出版信息
J Autism Dev Disord. 2012 Sep;42(9):1836-46. doi: 10.1007/s10803-011-1422-7.
Abstract
Health symptoms of mothers of adolescents and adults with fragile X syndrome (FXS; n = 112) were compared to a nationally-representative sample of mothers of similarly-aged children without disabilities (n = 230) as well as to a sample of mothers of adolescents and adults with autism spectrum disorders (ASD; n = 96). Health symptoms experienced in the previous 24 h were recorded during 8 consecutive days of a daily diary study. Both mothers of a son or daughter with FXS and mothers of a son or daughter with ASD had a higher proportion of days with headaches, backaches, muscle soreness, fatigue, and hot flashes than mothers of children without disabilities. Mothers of children with disabilities appear to be at particular risk for health problems, highlighting a need for comprehensive services for families across the lifespan.
摘要
患有脆性 X 综合征（FXS；n=112）的青少年和成年患者的母亲的健康症状与具有相似年龄的无残疾儿童的全国代表性母亲样本（n=230）以及患有自闭症谱系障碍（ASD；n=96）的青少年和成年患者的母亲样本进行了比较。在为期 8 天的日常日记研究中，记录了前 24 小时内经历的健康症状。患有 FXS 儿子或女儿的母亲和患有 ASD 儿子或女儿的母亲比没有残疾的儿童的母亲有更多的头痛、背痛、肌肉酸痛、疲劳和热潮红的日子。残疾儿童的母亲似乎面临着特殊的健康问题风险，这凸显了需要为整个生命周期的家庭提供全面的服务。
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