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脆性 X 综合征患儿、青少年及成人的家庭环境与行为问题。

Family environment and behavior problems in children, adolescents, and adults with fragile X syndrome.

机构信息

University of Wisconsin-Madison, Waisman Center, Madison, WI 83705, USA.

出版信息

Am J Intellect Dev Disabil. 2012 Jul;117(4):331-46. doi: 10.1352/1944-7558-117.4.331.

Abstract

We examine how the family environment is associated with aspects of the Fragile X syndrome phenotype during childhood, adolescence, and adulthood. Mothers of children (n  =  48), adolescents (n  =  85), and adults (n  =  34) with Fragile X syndrome participated in a multisite study. For children and adults with Fragile X syndrome, the presence of warmth and positivity and the absence of criticism were associated with fewer behavior problems. Although a higher level of criticism was significantly associated with greater behavior problems, there were only trend-level associations between levels of warmth and positivity and behavior problems during the adolescent years. The provision of family psychoeducation programs, which can reduce parental criticism, would likely benefit both the individual with Fragile X syndrome and the family.

摘要

我们研究了家庭环境如何与脆性 X 综合征表型的各个方面相关,包括儿童期、青少年期和成年期。脆性 X 综合征患儿(n=48)、青少年(n=85)和成人(n=34)的母亲参与了一项多中心研究。对于脆性 X 综合征患儿和成人,温暖和积极与较少的行为问题有关,而批评则与更多的行为问题有关。虽然较高水平的批评与更严重的行为问题显著相关,但在青少年时期,温暖和积极水平与行为问题之间只有趋势关联。提供家庭心理教育计划可以减少父母的批评,这可能对脆性 X 综合征患者及其家庭都有益。

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