Liaw Siaw-Teng, Taggart Jane, Dennis Sarah, Yeo Anthony
University of New South Wales, Sydney, Australia.
AMIA Annu Symp Proc. 2011;2011:785-94. Epub 2011 Oct 22.
The practice-based research network (PBRN) is a resource to recruit research participants; conduct developmental and pilot studies; and coordinate multicentre research, teaching, clinical care and quality assurance programs. It is a community-based laboratory for translational, clinical and health services research. The mining of clinical information systems of PBRNs can be used to monitor performance at the service unit level. However, are the routinely collected data of ePBRNs fit for the abovementioned purposes? We describe the establishment and governance of an ePBRN which included general practice and community health and hospital units, The general practice data quality was examined, using diabetes as the context, for completeness, correctness and consistency and assessed on its fitness for research, audit and quality assurance purposes. The quality of social determinants data was generally good while risk factors data were variable. Issues and strategies for improving data quality are discussed.
基于实践的研究网络(PBRN)是一种招募研究参与者的资源;开展发展性研究和试点研究;并协调多中心研究、教学、临床护理和质量保证项目。它是一个基于社区的转化、临床和卫生服务研究实验室。PBRN临床信息系统的挖掘可用于监测服务单元层面的绩效。然而,电子PBRN的常规收集数据是否适合上述目的?我们描述了一个包括全科医疗、社区卫生和医院单位的电子PBRN的建立和管理。以糖尿病为例,对全科医疗数据质量进行了完整性、正确性和一致性检查,并评估其是否适合研究、审计和质量保证目的。社会决定因素数据的质量总体良好,而风险因素数据则参差不齐。本文讨论了提高数据质量的问题和策略。