• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

常规收集数据的数据质量及适用性——基于电子实践研究网络(ePBRN)的一项全科医疗案例研究

Data quality and fitness for purpose of routinely collected data--a general practice case study from an electronic practice-based research network (ePBRN).

作者信息

Liaw Siaw-Teng, Taggart Jane, Dennis Sarah, Yeo Anthony

机构信息

University of New South Wales, Sydney, Australia.

出版信息

AMIA Annu Symp Proc. 2011;2011:785-94. Epub 2011 Oct 22.

PMID:22195136
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3243124/
Abstract

The practice-based research network (PBRN) is a resource to recruit research participants; conduct developmental and pilot studies; and coordinate multicentre research, teaching, clinical care and quality assurance programs. It is a community-based laboratory for translational, clinical and health services research. The mining of clinical information systems of PBRNs can be used to monitor performance at the service unit level. However, are the routinely collected data of ePBRNs fit for the abovementioned purposes? We describe the establishment and governance of an ePBRN which included general practice and community health and hospital units, The general practice data quality was examined, using diabetes as the context, for completeness, correctness and consistency and assessed on its fitness for research, audit and quality assurance purposes. The quality of social determinants data was generally good while risk factors data were variable. Issues and strategies for improving data quality are discussed.

摘要

基于实践的研究网络(PBRN)是一种招募研究参与者的资源;开展发展性研究和试点研究;并协调多中心研究、教学、临床护理和质量保证项目。它是一个基于社区的转化、临床和卫生服务研究实验室。PBRN临床信息系统的挖掘可用于监测服务单元层面的绩效。然而,电子PBRN的常规收集数据是否适合上述目的?我们描述了一个包括全科医疗、社区卫生和医院单位的电子PBRN的建立和管理。以糖尿病为例,对全科医疗数据质量进行了完整性、正确性和一致性检查,并评估其是否适合研究、审计和质量保证目的。社会决定因素数据的质量总体良好,而风险因素数据则参差不齐。本文讨论了提高数据质量的问题和策略。

相似文献

1
Data quality and fitness for purpose of routinely collected data--a general practice case study from an electronic practice-based research network (ePBRN).常规收集数据的数据质量及适用性——基于电子实践研究网络(ePBRN)的一项全科医疗案例研究
AMIA Annu Symp Proc. 2011;2011:785-94. Epub 2011 Oct 22.
2
The University of NSW electronic practice based research network: disease registers, data quality and utility.新南威尔士大学基于实践的电子研究网络:疾病登记、数据质量与效用。
Stud Health Technol Inform. 2012;178:219-27.
3
Primary Care Research Team Assessment (PCRTA): development and evaluation.基层医疗研究团队评估(PCRTA):开发与评估
Occas Pap R Coll Gen Pract. 2002 Feb(81):iii-vi, 1-72.
4
Validating an ontology-based algorithm to identify patients with type 2 diabetes mellitus in electronic health records.验证一种基于本体的算法,以在电子健康记录中识别2型糖尿病患者。
Int J Med Inform. 2014 Oct;83(10):768-78. doi: 10.1016/j.ijmedinf.2014.06.002. Epub 2014 Jun 20.
5
请你提供一下具体的原文内容,以便我进行翻译。
6
Practice-based Research Network Research Good Practices (PRGPs): Summary of Recommendations.基于实践的研究网络研究良好实践(PRGPs):建议摘要。
Clin Transl Sci. 2015 Dec;8(6):638-46. doi: 10.1111/cts.12317. Epub 2015 Aug 22.
7
The Norwegian PraksisNett: a nationwide practice-based research network with a novel IT infrastructure.挪威 PraksisNett:一个具有新型 IT 基础设施的全国性实践为基础的研究网络。
Scand J Prim Health Care. 2022 Jun;40(2):217-226. doi: 10.1080/02813432.2022.2073966. Epub 2022 May 13.
8
Future Directions for Practice-Based Research Networks (PBRNs): A CERA Survey.基于实践的研究网络(PBRNs)的未来方向:CERA 调查。
J Am Board Fam Med. 2018 Nov-Dec;31(6):917-923. doi: 10.3122/jabfm.2018.06.180069.
9
Practice-based Research Networks (PBRNs) in the Era of Integrated Delivery Systems.整合式医疗服务体系时代的基于实践的研究网络(PBRNs)
J Am Board Fam Med. 2015 Sep-Oct;28(5):658-62. doi: 10.3122/jabfm.2015.05.140353.
10
A Practice-Based Research Network (PBRN) Roadmap for Evaluating COVID-19 in Community Health Centers: A Report From the OCHIN PBRN.基于实践的研究网络(PBRN)评估社区健康中心中 COVID-19 的路线图:来自 OCHIN PBRN 的报告。
J Am Board Fam Med. 2020 Sep-Oct;33(5):774-778. doi: 10.3122/jabfm.2020.05.200053.

引用本文的文献

1
Can routinely collected primary healthcare data be used to assess Aboriginal children's health and wellbeing longitudinally? A retrospective analysis of electronic medical records from an Aboriginal community-controlled health service in Central Australia.常规收集的初级医疗保健数据能否用于纵向评估原住民儿童的健康和福祉?对澳大利亚中部一个原住民社区控制的健康服务机构的电子病历进行的回顾性分析。
Int J Popul Data Sci. 2025 Jul 10;10(1):2704. doi: 10.23889/ijpds.v10i1.2704. eCollection 2025.
2
Implications of Data Extraction and Processing of Electronic Health Records for Epidemiological Research: Observational Study.电子健康记录的数据提取与处理对流行病学研究的影响:观察性研究
J Med Internet Res. 2025 Jun 11;27:e64628. doi: 10.2196/64628.
3
A protocol for the HEaring Impairment Data Infrastructure (HEIDI) study.一项关于听力障碍数据基础设施(HEIDI)研究的方案。
PLoS One. 2025 May 7;20(5):e0320294. doi: 10.1371/journal.pone.0320294. eCollection 2025.
4
Primary Care EHR data on Social Determinants of Health: Quality and Fitness for Purpose in Precision/Personalised Medicine.初级保健电子健康记录中关于健康的社会决定因素的数据:精准/个性化医疗中的质量与适用性
Yearb Med Inform. 2024 Aug;33(1):32-44. doi: 10.1055/s-0044-1800716. Epub 2025 Apr 8.
5
Operationalising routinely collected patient data in research to further the pursuit of social justice and health equity: a team-based scoping review.将常规收集的患者数据用于研究以促进社会正义和健康公平的实施:一项基于团队的范围综述。
BMC Med Res Methodol. 2025 Jan 21;25(1):14. doi: 10.1186/s12874-025-02466-9.
6
Common data quality elements for health information systems: a systematic review.健康信息系统通用数据质量要素:系统评价。
BMC Med Inform Decis Mak. 2024 Sep 2;24(1):243. doi: 10.1186/s12911-024-02644-7.
7
A Study on the Evaluation of the Effect of Exercise on the Treatment of Chronic Diseases Based on a Digital Human Movement Model.基于数字人体运动模型的运动治疗慢性病效果评估研究。
J Healthc Eng. 2022 Jan 31;2022:1984145. doi: 10.1155/2022/1984145. eCollection 2022.
8
Exploring the Hazards of Scaling Up Clinical Data Analyses: A Drug Side Effect Discovery Case Report.探索扩大临床数据分析的危害:药物副作用发现案例报告。
AMIA Jt Summits Transl Sci Proc. 2021 May 17;2021:180-189. eCollection 2021.
9
Linking observational data from general practice, hospital admissions and diabetes clinic databases: can it be used to predict hospital admission?将一般实践、住院和糖尿病诊所数据库中的观察数据联系起来:可以用来预测住院吗?
BMC Health Serv Res. 2019 Jul 29;19(1):526. doi: 10.1186/s12913-019-4337-1.
10
Electronic health records and disease registries to support integrated care in a health neighbourhood: an ontology-based methodology.支持健康社区综合护理的电子健康记录与疾病登记:一种基于本体的方法
AMIA Jt Summits Transl Sci Proc. 2014 Apr 7;2014:50-4. eCollection 2014.

本文引用的文献

1
Key concepts to assess the readiness of data for international research: data quality, lineage and provenance, extraction and processing errors, traceability, and curation. Contribution of the IMIA Primary Health Care Informatics Working Group.评估国际研究数据准备情况的关键概念:数据质量、数据谱系与来源、提取与处理错误、可追溯性以及数据管理。国际医学信息学协会初级卫生保健信息学工作组的贡献。
Yearb Med Inform. 2011;6:112-20.
2
A system for solution-orientated reporting of errors associated with the extraction of routinely collected clinical data for research and quality improvement.一种用于以解决问题为导向报告与为研究和质量改进而提取常规收集的临床数据相关的错误的系统。
Stud Health Technol Inform. 2010;160(Pt 1):724-8.
3
The Information Quality Triangle: a methodology to assess clinical information quality.
Stud Health Technol Inform. 2010;160(Pt 1):699-703.
4
A method of identifying and correcting miscoding, misclassification and misdiagnosis in diabetes: a pilot and validation study of routinely collected data.一种识别和纠正糖尿病编码错误、分类错误和误诊的方法:一项基于常规收集数据的试点和验证研究。
Diabet Med. 2010 Feb;27(2):203-9. doi: 10.1111/j.1464-5491.2009.02917.x.
5
Primary care informatics and integrated care.初级保健信息学与综合医疗服务
Stud Health Technol Inform. 2010;151:255-68.
6
Cost-effectiveness analysis of integrated care for people with HIV, chronic mental illness and substance abuse disorders.针对感染艾滋病毒、患有慢性精神疾病和药物滥用障碍患者的综合护理成本效益分析。
J Ment Health Policy Econ. 2009 Mar;12(1):33-46.
7
The use of information technology to enhance diabetes management in primary care: a literature review.利用信息技术加强初级保健中的糖尿病管理:一项文献综述。
Inform Prim Care. 2008;16(3):229-37. doi: 10.14236/jhi.v16i3.698.
8
Emergency department information system diagnosis: how accurate is it?急诊科信息系统诊断:其准确性如何?
Emerg Med J. 2008 Nov;25(11):784. doi: 10.1136/emj.2007.050104.
9
Effectiveness of an integrated outpatient care programme compared with present-day standard care in early rheumatoid arthritis.与当前早期类风湿关节炎标准护理相比,综合门诊护理计划的有效性。
Musculoskeletal Care. 2009 Mar;7(1):1-16. doi: 10.1002/msc.136.
10
[Frequency of hospital-acquired pneumonia--comparison between electronic and paper-based patient records].[医院获得性肺炎的发生率——电子病历与纸质病历的比较]
Pneumologie. 2008 May;62(5):273-8. doi: 10.1055/s-2008-1038099. Epub 2008 Feb 13.