Department of General Practice, HELSAM, University of Oslo, Oslo, Norway.
Research Unit for General Practice, Department of General Practice, HELSAM, University of Oslo, Oslo, Norway.
Scand J Prim Health Care. 2022 Jun;40(2):217-226. doi: 10.1080/02813432.2022.2073966. Epub 2022 May 13.
Clinical research in primary care is relatively scarce. Practice-based research networks (PBRNs) are research infrastructures to overcome hurdles associated with conducting studies in primary care. In Norway, almost all 5.4 million inhabitants have access to a general practitioner (GP) through a patient-list system. This gives opportunity for a PBRN with reliable information about the general population. The aim of the current paper is to describe the establishment, organization and function of PraksisNett (the Norwegian Primary Care Research Network).
We describe the development, funding and logistics of PraksisNett as a nationwide PBRN.
PraksisNett received funding from the Research Council of Norway for an establishment period of five years (2018-2022). It is comprised of two parts; a human infrastructure (employees, including academic GPs) organized as four regional nodes and a coordinating node and an IT infrastructure comprised by the Snow system in conjunction with the Medrave M4 system. The core of the infrastructure is the 92 general practices that are contractually linked to PraksisNett. These include 492 GPs, serving almost 520,000 patients. Practices were recruited during 2019-2020 and comprise a representative mix of rural and urban settings spread throughout all regions of Norway.
Norway has established a nationwide PBRN to reduce hurdles for conducting clinical studies in primary care. Improved infrastructure for clinical studies in primary care is expected to increase the attractiveness for studies on the management of disorders and diseases in primary care and facilitate international research collaboration. This will benefit both patients, GPs and society in terms of improved quality of care.Key pointsPractice-based research networks (PBRNs) are research infrastructures to overcome hurdles associated with conducting studies in primary careImproved infrastructure for clinical studies in primary care is expected to increase the attractiveness for studies on the management of disorders and diseases in primary care and facilitate international research collaborationWe describe PraksisNett, a Norwegian PBRN consisting of 92 general practices including 492 GPs, serving almost 520,000 patientsAn advanced and secure IT infrastructure connects the general practices to PraksisNett and makes it possible to identify and recruit patients in a novel way, as well as reuse clinical dataPraksisNett will benefit both patients, GPs and society in terms of improved quality of careThis paper may inform and inspire initiatives to establish PBRNs elsewhere.
初级保健中的临床研究相对较少。实践为基础的研究网络（PBRNs）是克服在初级保健中进行研究相关障碍的研究基础设施。在挪威，几乎所有 540 万居民都可以通过患者名单系统获得一名全科医生（GP）。这为建立一个拥有可靠的普通人群信息的 PBRN 提供了机会。本文旨在描述 PraksisNett（挪威初级保健研究网络）的建立、组织和功能。
我们描述了作为一个全国性 PBRN 的 PraksisNett 的发展、资金和后勤情况。
PraksisNett 获得了挪威研究理事会的资金，用于建立期为五年（2018-2022 年）。它由两部分组成；一个由员工组成的人为基础设施（包括学术全科医生），组织为四个区域节点和一个协调节点；以及由 Snow 系统与 Medrave M4 系统结合组成的 IT 基础设施。该基础设施的核心是 92 家与 PraksisNett 签订合同的全科诊所。这些诊所包括 492 名全科医生，为近 52 万名患者提供服务。这些诊所是在 2019-2020 年期间招募的，包括农村和城市环境的各种代表性混合，分布在挪威的所有地区。
挪威已经建立了一个全国性的 PBRN，以减少在初级保健中进行临床研究的障碍。预期初级保健临床研究基础设施的改善将提高对初级保健中疾病和疾病管理研究的吸引力，并促进国际研究合作。这将有利于患者、全科医生和社会，提高医疗质量。
实践为基础的研究网络（PBRNs）是克服在初级保健中进行研究相关障碍的研究基础设施。
预期初级保健临床研究基础设施的改善将提高对初级保健中疾病和疾病管理研究的吸引力，并促进国际研究合作。
我们描述了 PraksisNett，一个由包括 492 名全科医生在内的 92 家全科诊所组成的挪威 PBRN，为近 52 万名患者提供服务。
一个先进和安全的 IT 基础设施将全科诊所与 PraksisNett 连接起来，使以新的方式识别和招募患者以及重复使用临床数据成为可能。
PraksisNett 将在提高医疗质量方面使患者、全科医生和社会受益。
本文可以为其他地方建立 PBRN 提供信息和启发。
