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本文引用的文献

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J Am Med Inform Assoc. 2010 Jul-Aug;17(4):373-4. doi: 10.1136/jamia.2010.004507.
2
A survey of Internet utilization among patients with cancer.癌症患者的互联网使用情况调查。
Support Care Cancer. 2011 Aug;19(8):1183-90. doi: 10.1007/s00520-010-0935-5. Epub 2010 Jun 18.
3
Cancer statistics, 2009.2009年癌症统计数据。
CA Cancer J Clin. 2009 Jul-Aug;59(4):225-49. doi: 10.3322/caac.20006. Epub 2009 May 27.
4
Seeking health information online: does Wikipedia matter?在网上搜索健康信息:维基百科重要吗?
J Am Med Inform Assoc. 2009 Jul-Aug;16(4):471-9. doi: 10.1197/jamia.M3059. Epub 2009 Apr 23.
5
Neuropsychological sequelae of non-central nervous system cancer and cancer therapy.非中枢神经系统癌症及癌症治疗的神经心理学后遗症
Neuropsychol Rev. 2008 Jun;18(2):121-31. doi: 10.1007/s11065-008-9058-x. Epub 2008 Apr 16.
6
Internet health resources and the cancer patient.互联网健康资源与癌症患者
Cancer Invest. 2008 Mar;26(2):202-7. doi: 10.1080/07357900701566197.
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Internet use by patients in an inflammatory bowel disease specialty clinic.炎症性肠病专科诊所中患者的互联网使用情况。
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8
How Web 2.0 is changing medicine.Web 2.0 如何改变医学。
BMJ. 2006 Dec 23;333(7582):1283-4. doi: 10.1136/bmj.39062.555405.80.
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Family medicine patients' use of the Internet for health information: a MetroNet study.家庭医学患者使用互联网获取健康信息:一项MetroNet研究。
J Am Board Fam Med. 2006 Jan-Feb;19(1):39-45. doi: 10.3122/jabfm.19.1.39.
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Patients using the Internet to obtain health information: how this affects the patient-health professional relationship.患者通过互联网获取健康信息:这如何影响医患关系。
Patient Educ Couns. 2006 Oct;63(1-2):24-8. doi: 10.1016/j.pec.2005.10.006. Epub 2006 Jan 6.

互联网上以患者为中心的癌症信息:维基百科与专业维护数据库的比较。

Patient-oriented cancer information on the internet: a comparison of wikipedia and a professionally maintained database.

机构信息

Department of Radiation Oncology, University of Pittsburgh Cancer Institute; University of Pittsburgh School of Medicine, Pittsburgh; Drexel University College of Medicine; Department of Radiation Oncology, Jefferson Medical College of Thomas Jefferson University, Kimmel Cancer Center, Philadelphia, PA; Bruce and Ruth Rappaport Faculty of Medicine, Technion-Israel Institute of Technology, Haifa, Israel.

出版信息

J Oncol Pract. 2011 Sep;7(5):319-23. doi: 10.1200/JOP.2010.000209. Epub 2011 Aug 4.

DOI:10.1200/JOP.2010.000209
PMID:22211130
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3170066/
Abstract

PURPOSE

A wiki is a collaborative Web site, such as Wikipedia, that can be freely edited. Because of a wiki's lack of formal editorial control, we hypothesized that the content would be less complete and accurate than that of a professional peer-reviewed Web site. In this study, the coverage, accuracy, and readability of cancer information on Wikipedia were compared with those of the patient-orientated National Cancer Institute's Physician Data Query (PDQ) comprehensive cancer database.

METHODS

For each of 10 cancer types, medically trained personnel scored PDQ and Wikipedia articles for accuracy and presentation of controversies by using an appraisal form. Reliability was assessed by using interobserver variability and test-retest reproducibility. Readability was calculated from word and sentence length.

RESULTS

Evaluators were able to rapidly assess articles (18 minutes/article), with a test-retest reliability of 0.71 and interobserver variability of 0.53. For both Web sites, inaccuracies were rare, less than 2% of information examined. PDQ was significantly more readable than Wikipedia: Flesch-Kincaid grade level 9.6 versus 14.1. There was no difference in depth of coverage between PDQ and Wikipedia (29.9, 34.2, respectively; maximum possible score 72). Controversial aspects of cancer care were relatively poorly discussed in both resources (2.9 and 6.1 for PDQ and Wikipedia, respectively, NS; maximum possible score 18). A planned subanalysis comparing common and uncommon cancers demonstrated no difference.

CONCLUSION

Although the wiki resource had similar accuracy and depth as the professionally edited database, it was significantly less readable. Further research is required to assess how this influences patients' understanding and retention.

摘要

目的

维基百科是一种协作式网站,例如维基百科,它可以自由编辑。由于维基缺乏正式的编辑控制,我们假设其内容会比专业同行评审的网站内容更不完整和准确。在这项研究中,比较了维基百科上癌症信息的覆盖范围、准确性和可读性与以患者为中心的美国国家癌症研究所医师数据查询(PDQ)综合癌症数据库。

方法

对于 10 种癌症类型中的每一种,受过医学培训的人员使用评估表来评估 PDQ 和维基百科文章的准确性和争议呈现方式。通过观察者间变异性和测试-再测试可重复性来评估可靠性。可读性是从单词和句子长度计算得出的。

结果

评估者能够快速评估文章(每篇文章 18 分钟),测试-再测试的可靠性为 0.71,观察者间变异性为 0.53。对于两个网站,错误都很少,不到检查信息的 2%。PDQ 的可读性明显高于维基百科:Flesch-Kincaid 等级分别为 9.6 和 14.1。PDQ 和维基百科的覆盖深度没有差异(分别为 29.9、34.2,最大可能得分为 72)。在两个资源中,癌症护理的争议方面都相对讨论不足(PDQ 和维基百科分别为 2.9 和 6.1,无统计学差异;最大可能得分为 18)。一项比较常见和罕见癌症的计划子分析表明,两者没有差异。

结论

尽管维基资源的准确性和深度与专业编辑的数据库相似,但它的可读性明显较差。需要进一步研究以评估这如何影响患者的理解和保留。