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主观贫困程度调节了照顾者身份与智力和发育障碍者成年同胞的心理结果之间的关联。

Subjective Poverty Moderates the Association Between Carer Status and Psychological Outcomes of Adult Siblings of People with Intellectual and Developmental Disabilities.

机构信息

Centre for Educational Development, Appraisal and Research, University of Warwick, New Education Building, Coventry, CV4 7AL, UK.

Department of Psychiatry, Centre for Developmental Psychiatry and Psychology, Monash University, Melbourne, Australia.

出版信息

J Autism Dev Disord. 2023 Mar;53(3):987-999. doi: 10.1007/s10803-022-05520-3. Epub 2022 Mar 19.

DOI:10.1007/s10803-022-05520-3
PMID:35304664
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9986199/
Abstract

Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings' mental distress, wellbeing, quality of life, and health outcomes. Moderated regression analyses indicated that siblings experiencing higher levels of subjective poverty; siblings with brothers and sisters with lower levels of independence; and siblings who are carers and also experiencing low levels of subjective poverty, had worse outcomes and may be in need of specific supports. Compared to normative samples, adult siblings of people with IDD had worse outcomes across the measures.

摘要

成年手足是智障和发育障碍(IDD)患者的重要照顾者、支持者、倡导者和朋友。基于对 851 名成年手足完成的在线全国调查数据,我们研究了手足心理健康、幸福、生活质量和健康结果的预测因素和潜在关键调节因素。调节回归分析表明,主观贫困程度较高的手足;与独立性较低的兄弟姐妹一起生活的手足;以及既是照顾者,又面临主观贫困的手足,其结果更差,可能需要特定的支持。与常模样本相比,智障人士的成年手足在所有指标上的结果都更差。

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本文引用的文献

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J Appl Res Intellect Disabil. 2020 Sep;33(5):1069-1079. doi: 10.1111/jar.12729. Epub 2020 Mar 19.
2
Using administrative data to examine variables affecting the mental health of siblings of children who have a developmental disability.利用行政数据研究影响发育障碍儿童兄弟姐妹心理健康的变量。
Res Dev Disabil. 2020 Jan;96:103516. doi: 10.1016/j.ridd.2019.103516. Epub 2019 Nov 19.
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JAMA Netw Open. 2018 Aug 3;1(4):e181465. doi: 10.1001/jamanetworkopen.2018.1465.
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Sibling relationship quality and psychosocial outcomes among adult siblings of individuals with autism spectrum disorder and individuals with intellectual disability without autism.自闭症谱系障碍患者以及无自闭症的智力残疾患者的成年兄弟姐妹之间的手足关系质量和心理社会结果。
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Sibling Caregivers of People With Intellectual and Developmental Disabilities: Sociodemographic Characteristics and Material Hardship Prevalence.智障和发育障碍人士的兄弟姐妹照顾者:社会人口统计学特征和物质困难发生率。
Intellect Dev Disabil. 2016 Oct;54(5):332-41. doi: 10.1352/1934-9556-54.5.332.
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Informal caregivers of people with an intellectual disability in England: health, quality of life and impact of caring.英国智障人士的非正式照料者:健康、生活质量及照料影响
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