Centre for Educational Development, Appraisal and Research, University of Warwick, New Education Building, Coventry, CV4 7AL, UK.
Department of Psychiatry, Centre for Developmental Psychiatry and Psychology, Monash University, Melbourne, Australia.
J Autism Dev Disord. 2023 Mar;53(3):987-999. doi: 10.1007/s10803-022-05520-3. Epub 2022 Mar 19.
Adult siblings are potentially important sources of care, support, advocacy, and friendship for their brothers and sisters with intellectual and developmental disabilities (IDD). Drawing on data about 851 adult siblings who completed an online national survey, we examined predictors and potential key moderators of siblings' mental distress, wellbeing, quality of life, and health outcomes. Moderated regression analyses indicated that siblings experiencing higher levels of subjective poverty; siblings with brothers and sisters with lower levels of independence; and siblings who are carers and also experiencing low levels of subjective poverty, had worse outcomes and may be in need of specific supports. Compared to normative samples, adult siblings of people with IDD had worse outcomes across the measures.
成年手足是智障和发育障碍(IDD)患者的重要照顾者、支持者、倡导者和朋友。基于对 851 名成年手足完成的在线全国调查数据,我们研究了手足心理健康、幸福、生活质量和健康结果的预测因素和潜在关键调节因素。调节回归分析表明,主观贫困程度较高的手足;与独立性较低的兄弟姐妹一起生活的手足;以及既是照顾者,又面临主观贫困的手足,其结果更差,可能需要特定的支持。与常模样本相比,智障人士的成年手足在所有指标上的结果都更差。