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Siblings of Children with Autism: the Siblings Embedded Systems Framework.自闭症儿童的兄弟姐妹:兄弟姐妹嵌入式系统框架
Curr Dev Disord Rep. 2017;4(2):37-45. doi: 10.1007/s40474-017-0110-5. Epub 2017 May 18.
2
Risk Factors for Behavioral and Emotional Difficulties in Siblings of Children With Autism Spectrum Disorder.自闭症谱系障碍儿童兄弟姐妹出现行为和情绪问题的风险因素。
Am J Intellect Dev Disabil. 2016 Nov;121(6):533-549. doi: 10.1352/1944-7558-121.6.533.
3
Outcomes in adult life among siblings of individuals with autism.自闭症患者兄弟姐妹的成年生活结局。
J Autism Dev Disord. 2015 Mar;45(3):707-18. doi: 10.1007/s10803-014-2224-5.
4
Parenting and the behavior problems of young children with an intellectual disability: concurrent and longitudinal relationships in a population-based study.育儿与智障幼儿的行为问题:一项基于人群的研究中的并发关系和纵向关系
Am J Intellect Dev Disabil. 2014 Sep;119(5):422-35. doi: 10.1352/1944-7558-119.5.422.
5
The wellbeing of siblings of children with disabilities.残疾儿童兄弟姐妹的幸福状况。
Res Dev Disabil. 2014 Sep;35(9):2085-92. doi: 10.1016/j.ridd.2014.05.001. Epub 2014 May 28.
6
Sibling Relationships and Influences in Childhood and Adolescence.童年和青少年时期的兄弟姐妹关系及影响
J Marriage Fam. 2012 Oct 1;74(5):913-930. doi: 10.1111/j.1741-3737.2012.01011.x.
7
Assessing functional impairment in siblings living with children with disability.评估与残疾儿童共同生活的兄弟姐妹的功能障碍。
Pediatrics. 2013 Aug;132(2):e476-83. doi: 10.1542/peds.2013-0644. Epub 2013 Jul 29.
8
Is there a bidirectional relationship between maternal well-being and child behavior problems in autism spectrum disorders? Longitudinal analysis of a population-defined sample of young children.母亲幸福感与自闭症谱系障碍儿童行为问题之间是否存在双向关系?对一个人群定义的幼儿样本的纵向分析。
Autism Res. 2013 Jun;6(3):201-11. doi: 10.1002/aur.1279. Epub 2013 Feb 21.
9
The effects of birth order and birth interval on the phenotypic expression of autism spectrum disorder.出生顺序和出生间隔对自闭症谱系障碍表型表达的影响。
PLoS One. 2012;7(11):e51049. doi: 10.1371/journal.pone.0051049. Epub 2012 Nov 30.
10
Predictors of future caregiving by adult siblings of individuals with intellectual and developmental disabilities.智力和发育障碍者的成年兄弟姐妹未来照顾的预测因素。
Am J Intellect Dev Disabil. 2012 Jan;117(1):33-47. doi: 10.1352/1944-7558-117.1.33.

基于人群的研究:智障儿童与非智障儿童的大龄兄姐的行为和情绪调整。

A Population-Based Study of the Behavioral and Emotional Adjustment of Older Siblings of Children with and without Intellectual Disability.

机构信息

Centre for Educational Development, Appraisal and Research, University of Warwick, Coventry, CV4 7AL, UK.

Centre for Developmental Psychiatry and Psychology, Department of Psychiatry, Monash University, Melbourne, Australia.

出版信息

J Abnorm Child Psychol. 2019 Aug;47(8):1409-1419. doi: 10.1007/s10802-018-00510-5.

DOI:10.1007/s10802-018-00510-5
PMID:30714074
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6616204/
Abstract

This is the first study on the behavioral and emotional adjustment of siblings of children with intellectual disabilities (ID) to use a population-based sample, from the third wave of the Millennium Cohort Study (MCS); a UK longitudinal birth cohort study. We examined differences between nearest-in-age older siblings (age 5-15) of MCS children (likely mainly with mild to moderate ID) identified with ID (n = 257 siblings) or not (n = 7246 siblings). The Strengths and Difficulties Questionnaire (SDQ) measured all children's adjustment. For SDQ total problems, 13.9% of siblings of children with ID and 8.9% of siblings of children without had elevated scores (OR 1.65; 95% CI 1.04, 2.62; p = 0.031). Similar group differences were found for SDQ peer and conduct problems. In logistic regression models, variables consistently associated with older sibling adjustment were: adjustment of the MCS cohort child, older sibling being male, family socio-economic position, primary carer psychological distress, and being from a single parent household. The ID grouping variable was no longer associated with adjustment for all SDQ domains, except siblings of children with ID were less likely to be identified as hyperactive (OR 0.30; 95% CI 0.10, 0.87; p = 0.027). Some older siblings of children with ID may be at additional risk for behavioral and emotional problems. Group differences were related mainly to social and family contextual factors. Future longitudinal research should address developmental pathways by which children with ID may affect sibling adjustment.

摘要

这是第一项使用基于人群样本研究智力障碍(ID)儿童兄弟姐妹行为和情绪调整的研究,该研究来自千年队列研究(MCS)的第三波;这是一项英国纵向出生队列研究。我们研究了 MCS 儿童(可能主要患有轻度至中度 ID)中 ID 识别的最接近年龄的年长兄弟姐妹(年龄 5-15 岁)(n = 257 兄弟姐妹)和未识别 ID 的年长兄弟姐妹(n = 7246 兄弟姐妹)之间的差异。《长处和困难问卷》(SDQ)衡量了所有儿童的适应情况。对于 SDQ 总问题,有 13.9%的 ID 儿童的兄弟姐妹和 8.9%的非 ID 儿童的兄弟姐妹的得分较高(OR 1.65;95%CI 1.04,2.62;p = 0.031)。在 SDQ 同伴和行为问题方面也发现了类似的组间差异。在逻辑回归模型中,与年长兄弟姐妹调整一致相关的变量包括:MCS 队列儿童的调整、年长兄弟姐妹为男性、家庭社会经济地位、主要照顾者心理困扰以及来自单亲家庭。除了 ID 儿童的兄弟姐妹不太可能被认定为多动(OR 0.30;95%CI 0.10,0.87;p = 0.027)外,ID 分组变量与所有 SDQ 领域的调整不再相关。一些 ID 儿童的年长兄弟姐妹可能面临额外的行为和情绪问题风险。组间差异主要与社会和家庭环境因素有关。未来的纵向研究应该探讨 ID 儿童可能影响兄弟姐妹适应的发展途径。