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美国印第安女性癌症幸存者的需求与偏好:癌症经历的社区支持

American Indian Women Cancer Survivor's Needs and Preferences: Community Support for Cancer Experiences.

作者信息

Burnette Catherine E, Roh Soonhee, Liddell Jessica, Lee Yeon-Shim

机构信息

School of Social Work, Tulane University, 127 Elk Place, #8906, New Orleans, LA, 70112, USA.

Department of Social Work, 365 Health Science Center, University of South Dakota, 1400 West 22nd Street, Sioux Falls, SD, 57105, USA.

出版信息

J Cancer Educ. 2019 Jun;34(3):592-599. doi: 10.1007/s13187-018-1346-4.

Abstract

Cancer (the focus of this inquiry) is the leading cause of death among American Indian and Alaska Native women. The purpose of this study was to identify American Indian women cancer survivors' needs and preferences related to community supports for their cancer experience. This qualitative study examined female American Indian cancer survivors' needs and preferences about community support. The sample included 43 American Indian women cancer survivors (the types of cancer survivors included cervical cancer: n = 14; breast cancer: n = 14; and colon and other types: n = 15) residing in the Northern Plains region, in the state of South Dakota. Data were analyzed using qualitative content analysis and were collected between June of 2014 and February of 2015. When asked about their needs and preferences, 82% of participants (n = 35) of female American Indian cancer survivors reported at least one of the following most commonly reported themes: cancer support groups (n = 31, 72%), infrastructure for community support (n = 17, 40%), and cancer education (n = 11, 26%). In addition to the aforementioned themes, 33% of participants (n = 14) indicated the need for an improved healthcare system, with 11% (n = 5) of participants expressly desiring the integration of spirituality and holistic healing options. The majority of American Indian women cancer survivor participants of this study identified a need for more community-based support systems and infrastructures to aid with the cancer survivor experience. Results warrant a community approach to raise awareness, education, and support for American Indian cancer survivors.

摘要

癌症(本研究的重点)是美国印第安人和阿拉斯加原住民女性的主要死因。本研究的目的是确定美国印第安女性癌症幸存者在其癌症经历方面对社区支持的需求和偏好。这项定性研究考察了美国印第安女性癌症幸存者对社区支持的需求和偏好。样本包括居住在南达科他州北部平原地区的43名美国印第安女性癌症幸存者(癌症幸存者类型包括宫颈癌:n = 14;乳腺癌:n = 14;结肠及其他类型:n = 15)。数据于2014年6月至2015年2月期间收集,并采用定性内容分析法进行分析。当被问及她们的需求和偏好时,82%的美国印第安女性癌症幸存者参与者(n = 35)报告了以下至少一个最常提及的主题:癌症支持小组(n = 31,72%)、社区支持基础设施(n = 17,40%)以及癌症教育(n = 11,26%)。除上述主题外,33%的参与者(n = 14)表示需要改善医疗保健系统,11%(n = 5)的参与者明确希望将精神层面和整体治疗选项纳入其中。本研究中大多数美国印第安女性癌症幸存者参与者都指出需要更多基于社区的支持系统和基础设施,以帮助她们应对癌症幸存者经历。研究结果表明需要采取社区方法来提高对美国印第安癌症幸存者的认识、教育和支持。

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