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创伤性脑损伤:照顾者的问题与需求

Traumatic brain injury: caregivers' problems and needs.

作者信息

Hassan S T S, Khaw W F, Rosna A R, Husna J

机构信息

Department of Medicine, Faculty of Medicine and Health Sciences, Universiti Putra Malaysia, Serdang.

出版信息

JNMA J Nepal Med Assoc. 2011 Jan-Mar;51(181):53-5.

PMID:22335097
Abstract

Traumatic brain injury (TBI) is an increasingly major world health problem. This short review using the most pertinent articles on TBI caregiving problems and needs highlights the pressing issues. Articles focusing on both TBI-caregivers' problems and needs are rarely found, especially for developing countries. Most TBI-caregiving is done by family members, whose altered lives portend burden and stresses which add to the overwhelming demand of caring for the TBI-survivor. Lack of information, financial inadequacy, anxiety, distress, coping deficits, poor adaptability, inadequate knowledge and skills, and a poor support system comprise the major problems. Dysfunctional communication between caregivers and care-receivers has been little researched. The major needs are focused on health and rehabilitation information, financial advice and assistance, emotional and social support, and positive psychological encouragement. In time, health information needs may be met, but not emotional support. Information on TBI caregiving problems and unmet needs is critical to all relevant healthcare stakeholders.

摘要

创伤性脑损伤(TBI)是一个日益严重的全球性健康问题。这篇简短的综述通过使用关于TBI护理问题和需求的最相关文章,突出了紧迫的问题。很少能找到同时关注TBI护理者问题和需求的文章,尤其是在发展中国家。大多数TBI护理工作由家庭成员完成,他们生活的改变预示着负担和压力,这增加了照顾TBI幸存者的巨大需求。信息缺乏、资金不足、焦虑、痛苦、应对能力不足、适应能力差、知识和技能欠缺以及支持系统不完善构成了主要问题。护理者与接受护理者之间功能失调的沟通很少被研究。主要需求集中在健康和康复信息、财务建议和援助、情感和社会支持以及积极的心理鼓励。随着时间的推移,健康信息需求可能会得到满足,但情感支持却无法满足。关于TBI护理问题和未满足需求的信息对所有相关医疗保健利益相关者至关重要。

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