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创伤性脑损伤幸存者照顾者的需求以及 COVID-19 大流行期间所需的应对措施:公共卫生问题

The needs of traumatic brain injury survivors' caregivers and the implication required during the COVID-19 pandemic: Public health issues.

作者信息

Othman Hamidah, Ludin Salizar Mohamed, Saidi Sanisah, Awang Mohamed Saufi

机构信息

Critical Care Nursing Department, Kulliyyah of Nursing, International Islamic University Malaysia (IIUM), Kuantan, Pahang.

Medical-Surgical Nursing Department, Kulliyyah of Nursing, International Islamic University Malaysia (IIUM), Kuantan, Pahang.

出版信息

J Public Health Res. 2021 Apr 14;10(2):2205. doi: 10.4081/jphr.2021.2205.

Abstract

BACKGROUND

Traumatic brain injury (TBI) survivors require attention and dependence from their primary caregiver. This is because TBI is a defect that affects both the psychological and physical functions of the victim. Caregivers play an essential role in providing the adequate care victims need to adjust to the new problems they may experience due to their condition, as family members alone may not be able to provide for their needs. In particular, TBI caregivers may face specific challenges when assisting their patients in handling unexpected changes to their daily routines. Therefore, this quantitative study aims to explore the needs of caregivers, their coping mechanisms towards stressful and traumatic circumstances, and how they provide care to their loved ones during the COVID-19 pandemic.

DESIGN AND METHODS

It was conducted with ten caregivers of individuals suffering from traumatic brain injury, that were selected using a theoretical sampling method. Data were obtained using a semi-structured interview guide, which helped the caregivers provide their responses. Meanwhile, data analysis was performed using the NVIVO analysis software.

RESULTS

The results showed that there were, three significant themes namely, (a) Support needed, (b) the information need for care, and (c) developing self-resilience. The results also showed that caregivers really need support from the various parties, and the participants lack information on specific care techniques for the severe traumatic brain injury (TBI) survivors.

CONCLUSION

In conclusion, caregivers require approval and seek more useful information to provide excellent care to their loved ones. Being aware of the caregiver's needs would enable them to offer improved customized care.

摘要

背景

创伤性脑损伤(TBI)幸存者需要其主要照料者的关注和照料。这是因为创伤性脑损伤是一种会影响受害者心理和生理功能的缺陷。照料者在提供受害者适应因自身状况可能遇到的新问题所需的充分照料方面发挥着至关重要的作用,因为仅靠家庭成员可能无法满足他们的需求。特别是,TBI照料者在协助患者应对日常活动的意外变化时可能会面临特定挑战。因此,这项定量研究旨在探讨照料者的需求、他们应对压力和创伤情况的机制,以及在新冠疫情期间他们如何照顾自己所爱的人。

设计与方法

该研究对10名创伤性脑损伤患者的照料者进行,采用理论抽样方法进行选择。通过半结构化访谈指南获取数据,这有助于照料者做出回应。同时,使用NVIVO分析软件进行数据分析。

结果

结果显示有三个重要主题,即(a)所需支持,(b)护理信息需求,以及(c)培养自我复原力。结果还表明,照料者非常需要各方的支持,且参与者缺乏关于重度创伤性脑损伤(TBI)幸存者特定护理技术的信息。

结论

总之,照料者需要认可并寻求更多有用信息,以便为他们所爱的人提供优质护理。了解照料者的需求将使他们能够提供更好的定制护理。

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本文引用的文献

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Family caregiving of individuals with traumatic brain injury in Botswana.博茨瓦纳创伤性脑损伤患者的家庭护理
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Family functioning, psychosocial stress, and goal attainment in brain injury rehabilitation.
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Role of social support in predicting caregiver burden.社会支持在预测照顾者负担中的作用。
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