Department of Nursing, Seirei Christopher University, Hamamatsu, Shizuoka, Japan.
J Pain Symptom Manage. 2012 Mar;43(3):503-14. doi: 10.1016/j.jpainsymman.2011.04.025.
Increasing numbers of patients with advanced cancer are receiving anticancer and/or palliative treatment in outpatient settings, and palliative care for outpatients with advanced cancer is being recognized as one of the most important areas for comprehensive cancer treatment.
The aim of this study was to evaluate pain intensity, quality of life, quality of palliative care, and satisfaction reported by outpatients with advanced cancer.
Questionnaires were sent to 1493 consecutive outpatients with metastatic or recurrent cancer from four regions in Japan; 859 responses were analyzed (58%). Questionnaires included the Brief Pain Inventory, Good Death Inventory, Care Evaluation Scale, and a six-point satisfaction scale.
Approximately 20% of the patients reported moderate to severe pain. Whereas more than 70% agreed or strongly agreed with "good relationship with medical staff" and "being respected as an individual," less than 60% agreed or strongly agreed with "free from physical distress," "free from emotional distress," "maintaining hope," and "fulfillment at life's completion"; 54% reported some agreement with "feel a burden to others." About 20% reported that improvement is necessary in physical care by physicians, physical care by nurses, psycho-existential care, help with decision making, and coordination/consistency of care; 13% reported some levels of dissatisfaction.
A considerable number of outpatients with metastatic or recurrent cancer experienced pain, physical symptoms, emotional distress, and existential suffering, and advocated improvements in palliative care across multiple areas.
越来越多的晚期癌症患者在门诊接受抗癌和/或姑息治疗，姑息治疗已被公认为晚期癌症门诊综合治疗的最重要领域之一。
本研究旨在评估晚期癌症门诊患者的疼痛强度、生活质量、姑息护理质量和满意度。
向日本四个地区的 1493 名转移性或复发性癌症连续门诊患者发送了问卷；对 859 份回应进行了分析（58%）。问卷包括简短疼痛量表、美好死亡量表、关怀评估量表和六点满意度量表。
约 20%的患者报告有中度至重度疼痛。超过 70%的患者同意或强烈同意“与医务人员关系良好”和“作为个体受到尊重”，但不到 60%的患者同意或强烈同意“无身体不适”、“无情绪困扰”、“保持希望”和“完成生命的充实感”；54%的患者表示在某种程度上同意“感到对他人有负担”。约 20%的患者报告医生提供的身体护理、护士提供的身体护理、心理-存在关怀、决策帮助以及护理的协调/一致性方面需要改进；13%的患者表示有一定程度的不满。
相当数量的转移性或复发性癌症门诊患者经历了疼痛、身体症状、情绪困扰和存在性痛苦，并倡导在多个领域改善姑息治疗。
