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理想的保湿剂:对儿童期特应性皮炎的父母期望和实践的调查。

The ideal moisturizer: a survey of parental expectations and practice in childhood-onset eczema.

机构信息

Department of Paediatrics, The Chinese University of Hong Kong, Prince of Wales Hospital, Shatin, Hong Kong SAR, China.

出版信息

J Dermatolog Treat. 2013 Feb;24(1):7-12. doi: 10.3109/09546634.2012.672713. Epub 2012 Apr 12.

DOI:10.3109/09546634.2012.672713
PMID:22390400
Abstract

AIM

We evaluated the moisturizing and bathing practices and preferences of patients with childhood-onset eczema.

METHODS

The attitudes and practice of patients with eczema managed at a pediatric dermatology clinic were evaluated, using children with non-eczematous skin diseases as controls. Disease severity of eczema in the preceding 12 months was evaluated by the Nottingham Eczema Severity Score (NESS). Skin hydration (SH) and transepidermal water loss (TEWL) were assessed.

RESULTS

Majority of patients took shower instead of bath and spent 12-13 min in shower. Most eczema patients applied emollients after shower/bath. Air-conditioning use was frequent, and patients with eczema maintained a lower ambient temperature than non-eczema patients (p = 0.001). Most eczema patients reported regular emollient usage (1.8 times/day for mild vs 2.8 times/day for moderate-to-severe eczema, p = 0.001), and acceptability of the current product was good to fair. Parents reported that the current emollients were most often recommended by doctors. Majority of parents/patients with mild eczema thought an ideal emollient needs only to be used twice a day whereas moderate-to-severe patients preferred more frequent usage (p = 0.001), and most of them preferred a non-fragrant, non-herbal white cream. Agreements concerning ideal emollient usage were only "moderate-to-fair" (kappa values <0.61), implying what parents/patients practiced was not the same as what they preferred.

CONCLUSION

This study helps better understand the emolliation practices and preferences of eczema patients. Doctors remain the most important source of recommendation. Majority think an ideal moisturizer is a non-fragrant, non-herbal, white or transparent cream which needs only to be used two to three times per day. Compliance may be enhanced if the recommended moisturizer conforms to the parents/patients preference.

摘要

目的

评估儿童期特应性皮炎患者的保湿和沐浴习惯及偏好。

方法

评估皮肤科门诊管理的特应性皮炎患者的态度和做法,并以非特应性皮炎患者作为对照。采用诺丁汉特应性皮炎严重程度评分(NESS)评估过去 12 个月内的特应性皮炎严重程度。评估皮肤水分(SH)和经表皮水分流失(TEWL)。

结果

大多数患者选择淋浴而非盆浴,淋浴时间为 12-13 分钟。大多数特应性皮炎患者在沐浴后使用保湿剂。空调使用率较高,特应性皮炎患者的环境温度低于非特应性皮炎患者(p=0.001)。大多数特应性皮炎患者报告常规使用保湿剂(轻度患者 1.8 次/天,中重度患者 2.8 次/天,p=0.001),且对当前产品的接受度良好至尚可。家长报告称,目前的保湿剂大多是医生推荐的。大多数轻度特应性皮炎患者认为理想的保湿剂只需每天使用两次,而中重度患者更喜欢更频繁的使用(p=0.001),且大多数人更喜欢无香味、非草药的白色乳膏。关于理想保湿剂使用的一致性仅为“中等至一般”(kappa 值<0.61),这意味着家长/患者的实际做法与偏好不同。

结论

本研究有助于更好地了解特应性皮炎患者的保湿习惯和偏好。医生仍然是最重要的推荐来源。大多数人认为理想的保湿剂是无香味、非草药、白色或透明的乳膏,只需每天使用两到三次。如果推荐的保湿剂符合家长/患者的偏好,依从性可能会提高。

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