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一项关于高功能自闭症谱系障碍成人生活质量及其相关因素的全国性调查。

A nationwide survey on quality of life and associated factors of adults with high-functioning autism spectrum disorders.

机构信息

National Center of Neurology and Psychiatry, Japan.

出版信息

Autism. 2013 Jan;17(1):15-26. doi: 10.1177/1362361312436848. Epub 2012 Mar 7.

Abstract

The psychosocial outcomes of individuals with high-functioning autism spectrum disorder (HFASD) appear to be diverse and are often poor relative to their intellectual or language level. To identify predictive variables that are potentially ameliorable by therapeutic intervention, this study investigated self-reported psychosocial quality of life and associated factors for adults with HFASD. All participants (n = 154) had a diagnosis of autism spectrum disorder, were over 18 years of age, lived in the community, and had used one or more support services during the survey period. The results demonstrated that psychosocial quality of life was lower than that of the general Japanese adult population. Environmental factors, such as mother's support and early diagnosis, were associated with better quality of life, and aggressive behaviors were associated with poorer quality of life, while expressive language level at preschool years, a conventional outcome predictor, did not predict quality of life. These results emphasize that quality of life measures should be included as outcome indicators in treating individuals with HFASD.

摘要

高功能自闭症谱系障碍(HFASD)个体的心理社会结局似乎多种多样,且往往与其智力或语言水平相比较差。为了确定潜在可通过治疗干预改善的预测变量,本研究调查了 HFASD 成人的自我报告心理社会生活质量及其相关因素。所有参与者(n=154)均被诊断为自闭症谱系障碍,年龄超过 18 岁,居住在社区,并在调查期间使用了一种或多种支持服务。结果表明,心理社会生活质量低于一般日本成年人群体。环境因素,如母亲的支持和早期诊断,与更高的生活质量相关,而攻击性行为与更差的生活质量相关,而学前表达性语言水平,作为常规结局预测指标,并不预测生活质量。这些结果强调,应将生活质量测量作为治疗 HFASD 个体的结局指标纳入其中。

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