Department of Pediatrics, Emory University School of Medicine, Atlanta, GA 30322, USA.
J Cancer Surviv. 2012 Sep;6(3):270-7. doi: 10.1007/s11764-012-0224-z. Epub 2012 May 5.
To develop a model of shared healthcare delivery that includes primary care providers (PCP) and ensures best practice in follow-up of pediatric cancer survivors.
Structured interviews with healthcare professionals (HCPs) were used to ascertain familiarity and confidence in providing care to survivors. Partnerships were made with HCP societies, and survivor care lectures were given at HCP meetings. HCP's preferences for ongoing continuing education (CE) opportunities were ascertained. Cancer SurvivorLink(TM), a web-based tool, was developed to allow patients to securely store their healthcare documents and share them electronically with registered HCPs. Educational material developed for Cancer SurvivorLink(TM) includes CE modules and QuickFacts--concise summaries of late effects. Website utilization was monitored utilizing Google Analytics.
HCPs described moderate to very low familiarity with survivor care, but high interest in online CE learning. Thirty-one lectures were given to HCP groups to increase awareness. Preferred types of ongoing CE were: lectures, online text, and video modules. CE material was developed based on feedback from HCPs and website utilizations and includes 19 QuickFacts and 5 CE modules. During the first year, the website had 471 unique visitors and 1,129 total visits. QuickFacts received 345 views with Neurocognitive, Survivor Care 101, and Endocrine being most visited, and 49 CME modules have been completed.
PCPs are interested in partnering in models of shared care for pediatric cancer survivors. Effective educational initiatives include lectures within HCP's professional education constructs and web-based CE opportunities. PCP involvement in survivor care alleviates some barriers to care such as geographic distance to the the cancer center and ensures that more pediatric cancer survivors receive recommended coordinated surveillance for late effects of cancer therapy.
开发一种包含初级保健提供者（PCP）的共享医疗保健服务模式，并确保对儿科癌症幸存者进行最佳随访。
对医疗保健专业人员（HCP）进行结构化访谈，以确定他们对提供幸存者护理的熟悉程度和信心。与 HCP 学会建立合作伙伴关系，并在 HCP 会议上举办幸存者护理讲座。确定 HCP 对持续继续教育（CE）机会的偏好。开发了一个基于网络的工具 Cancer SurvivorLink(TM)，允许患者安全地存储他们的医疗文件，并与注册的 HCP 电子共享。为 Cancer SurvivorLink(TM)开发的教育材料包括 CE 模块和 QuickFacts-晚期效应的简明摘要。利用 Google Analytics 监测网站使用情况。
HCP 描述对幸存者护理的熟悉程度为中等至非常低，但对在线 CE 学习非常感兴趣。举办了 31 次讲座以提高认识。首选的持续 CE 类型为：讲座、在线文本和视频模块。根据 HCP 的反馈和网站使用情况开发了 CE 材料，包括 19 个 QuickFacts 和 5 个 CE 模块。在第一年，该网站有 471 位独立访客，总访问量为 1129 次。QuickFacts 收到 345 次查看，其中神经认知、生存护理 101 和内分泌最受欢迎，完成了 49 个 CME 模块。
PCP 有兴趣参与儿科癌症幸存者共享护理模式。有效的教育计划包括在 HCP 的专业教育结构内的讲座和基于网络的 CE 机会。PCP 参与幸存者护理可以减轻一些护理障碍，例如与癌症中心的地理距离，并确保更多的儿科癌症幸存者接受推荐的癌症治疗晚期效应的协调监测。
