Department of Health Services Research, Palo Alto Medical Foundation Research Institute, California, USA.
Health Aff (Millwood). 2012 May;31(5):1030-8. doi: 10.1377/hlthaff.2011.0576.
Relatively little is known about why some patients are reluctant to engage in a collaborative discussion with physicians about their choices in health care. To explore this issue further, we conducted six focus-group sessions with forty-eight people in the San Francisco Bay Area. In the focus groups, we found that participants voiced a strong desire to engage in shared decision making about treatment options with their physicians. However, several obstacles inhibit those discussions. These include the fact that even relatively affluent and well-educated patients feel compelled to conform to socially sanctioned roles and defer to physicians during clinical consultations; that physicians can be authoritarian; and that the fear of being categorized as "difficult" prevents patients from participating more fully in their own health care. We argue that physicians may not be aware of a need to create a safe environment for open communication to facilitate shared decision making. Rigorous measures of patient engagement, and of the degree to which health care decisions truly reflect patient preferences, are needed to advance shared decision making in clinical practice.
人们对于为什么有些患者不愿意与医生就其医疗保健选择进行协作性讨论知之甚少。为了进一步探讨这个问题,我们在旧金山湾区进行了六组 48 人的焦点小组讨论。在焦点小组中,我们发现参与者强烈希望与医生共同参与治疗方案的决策。然而,有几个障碍阻碍了这些讨论。这些障碍包括:即使是相对富裕和受过良好教育的患者,也感到不得不遵从社会认可的角色,并在临床咨询时听从医生的意见;医生可能具有权威性;以及担心被归类为“难缠”会阻止患者更充分地参与自己的医疗保健。我们认为,医生可能没有意识到需要营造一个安全的沟通环境,以促进共同决策。需要采取严格的患者参与度衡量措施,以及衡量医疗决策在多大程度上真正反映患者的偏好,以推动临床实践中的共同决策。