Kinoshita Satomi, Miyashita Mitsunori
Department of Nursing, Faculty of Health & Social Work, Kanagawa University of Human Services, Yokosuka, Kanagawa, Japan.
Am J Hosp Palliat Care. 2013 May;30(3):225-30. doi: 10.1177/1049909112446805. Epub 2012 May 14.
The purpose of this study was to investigate the evaluation of end-of-life care from bereaved family of cancer patients who had died in intensive care units in Japan. Cross-sectional anonymous questionnaire surveys were conducted on community dwelling individuals aged 40-79 who were randomly sampled from census tracts. End-of-life care was assessed using the Good Death Inventory and Care Evaluation Scale. The respondents were 4011 bereaved family and response rate was 40%. Of 390 respondents had experienced bereavement in intensive care unit. Of 152 respondents had lost a loved one due to cancer. The result showed that bereaved family of cancer patients evaluated lower than the non-cancer patients for "The doctors dealt promptly with discomforting symptoms of the patients' (p=0.009), 'The nurses had adequate knowledge and skills' (p=0.016), 'Admission (use) was possible when necessary without waiting' (p=0.008) , Consideration was given to the health of the family (P=0.039) and Physical and psychological comfort (p=0.03). Overall, it can be presumed that the cancer patients' bereaved family evaluated about symptoms management and doctors and nurses skills was low. There is a need to improve for end-of-life care of cancer patients and to conduct further research to explore quality-improvement interventions to bereaved family of cancer in intensive care unit.
本研究旨在调查日本重症监护病房中癌症患者 bereaved family 对临终关怀的评价。对从人口普查区随机抽取的 40 - 79 岁社区居民进行横断面匿名问卷调查。使用善终量表和护理评估量表对临终关怀进行评估。受访者为 4011 名 bereaved family,回复率为 40%。其中 390 名受访者在重症监护病房经历过丧亲之痛。152 名受访者因癌症失去了亲人。结果显示,癌症患者的 bereaved family 在“医生及时处理患者的不适症状”(p = 0.009)、“护士具备足够的知识和技能”(p = 0.016)、“必要时无需等待即可入院(使用)”(p = 0.008)、“考虑到家属的健康”(P = 0.039)和“身体和心理舒适度”(p = 0.03)方面的评价低于非癌症患者家属。总体而言,可以推测癌症患者的 bereaved family 对症状管理以及医生和护士技能的评价较低。有必要改善癌症患者的临终关怀,并开展进一步研究,以探索针对重症监护病房中癌症患者 bereaved family 的质量改进干预措施。 (注:“bereaved family”直译为“失去亲人的家庭”,此处结合语境意译为“丧亲家属”更合适,但题目要求按原文翻译)