Suppr超能文献

保留未来孩子的权利:伦理案例分析。

Preserving the right to future children: an ethical case analysis.

机构信息

Moffitt Cancer Center, Health Outcomes and Behavior Program, Tampa, FL 33612, USA.

出版信息

Am J Bioeth. 2012;12(6):38-43. doi: 10.1080/15265161.2012.673688.

Abstract

We report on the case of a 2-year-old female, the youngest person ever to undergo ovarian tissue cryopreservation (OTC). This patient was diagnosed with a rare form of sickle cell disease, which required a bone-marrow transplant, and late effects included high risk of future infertility or complete sterility. Ethical concerns are raised, as the patient's mother made the decision for OTC on the patient's behalf with the intention that this would secure the option of biological childbearing in the future. Based on Beauchamp and Childress's principlism approach of respect for autonomy, nonmaleficence, beneficence, and justice, pursing OTC was ethically justified.

摘要

我们报告了一例 2 岁女性的病例,她是接受卵巢组织冷冻保存(OTC)的年龄最小的人。该患者被诊断出患有一种罕见的镰状细胞病,需要进行骨髓移植,其晚期并发症包括未来不孕或完全不育的高风险。有人提出了伦理问题,因为患者的母亲代表患者做出了进行 OTC 的决定,目的是为未来的生育选择提供保障。基于比彻姆和邱瑞斯的自主尊重、不伤害、行善和公正的原则主义方法,追求 OTC 在伦理上是合理的。

相似文献

1
Preserving the right to future children: an ethical case analysis.
Am J Bioeth. 2012;12(6):38-43. doi: 10.1080/15265161.2012.673688.
2
Reframing the justice implications of preserving the right to future children.
Am J Bioeth. 2012;12(6):53-5. doi: 10.1080/15265161.2012.672622.
5
Reproductive autonomy is an illusion.
Am J Bioeth. 2012;12(6):44-5. doi: 10.1080/15265161.2012.671893.
6
Preserving capabilities.
Am J Bioeth. 2012;12(6):48-9. doi: 10.1080/15265161.2012.671898.
7
The missing piece(s).
Am J Bioeth. 2012;12(6):52-3. doi: 10.1080/15265161.2012.671896.
8
The method of 'principlism': a critique of the critique.
J Med Philos. 1992 Oct;17(5):487-510. doi: 10.1093/jmp/17.5.487.
9
When four principles are too many: bloodgate, integrity and an action-guiding model of ethical decision making in clinical practice.
J Med Ethics. 2012 Apr;38(4):195-6. doi: 10.1136/medethics-2011-100136. Epub 2011 Nov 10.
10
Ethical aspects of judging the alternative treatment of children with cancer.
Nurs Ethics. 1995 Mar;2(1):51-62. doi: 10.1177/096973309500200107.

引用本文的文献

1
Sickle cell disease and infertility risks: implications for counseling and care of affected girls and women.
Expert Rev Hematol. 2024 Aug;17(8):493-504. doi: 10.1080/17474086.2024.2372320. Epub 2024 Jun 26.
2
Ethical, legal, social, and policy issues of ovarian tissue cryopreservation in prepubertal girls: a critical interpretive review.
J Assist Reprod Genet. 2024 Apr;41(4):999-1026. doi: 10.1007/s10815-024-03059-z. Epub 2024 Mar 2.
3
Expecting more: the case for incorporating fertility services into comprehensive sickle cell disease care.
Lancet Haematol. 2023 Mar;10(3):e225-e234. doi: 10.1016/S2352-3026(22)00353-2. Epub 2023 Jan 25.
4
Incorporating gonadal health counseling into pediatric care of sickle cell patients.
Hematology Am Soc Hematol Educ Program. 2022 Dec 9;2022(1):442-449. doi: 10.1182/hematology.2022000382.
5
Pediatric and Adolescent Oncofertility in Male Patients-From Alpha to Omega.
Genes (Basel). 2021 May 8;12(5):701. doi: 10.3390/genes12050701.
6
A View from the past into our collective future: the oncofertility consortium vision statement.
J Assist Reprod Genet. 2021 Jan;38(1):3-15. doi: 10.1007/s10815-020-01983-4. Epub 2021 Jan 6.
7
Discussing motherhood when the oncological prognosis is dire: ethical considerations for physicians.
ESMO Open. 2020 Nov;5(6):e000956. doi: 10.1136/esmoopen-2020-000956.
8
Development of a Pediatric Fertility Preservation Program: A Report From the Pediatric Initiative Network of the Oncofertility Consortium.
J Adolesc Health. 2019 May;64(5):563-573. doi: 10.1016/j.jadohealth.2018.10.297. Epub 2019 Jan 14.
9
The National Physicians Cooperative: transforming fertility management in the cancer setting and beyond.
Future Oncol. 2018 Dec;14(29):3059-3072. doi: 10.2217/fon-2018-0278. Epub 2018 Nov 26.
10
Current standing and future directions in pediatric oncofertility: a narrative review.
Transl Androl Urol. 2018 Jul;7(Suppl 3):S276-S282. doi: 10.21037/tau.2018.05.04.

本文引用的文献

1
[Fertility preservation in prepubertal children].
Bull Cancer. 2011 May;98(5):489-99. doi: 10.1684/bdc.2011.1362.
2
Infertility, cancer, and changing gender norms.
J Cancer Surviv. 2011 Jun;5(2):152-7. doi: 10.1007/s11764-010-0166-2. Epub 2010 Dec 31.
4
Ethical issues surrounding fertility preservation in cancer patients.
Clin Obstet Gynecol. 2010 Dec;53(4):717-26. doi: 10.1097/GRF.0b013e3181f96a70.
6
The impact of infertility: why ART should be a higher priority for women in the global South.
Cancer Treat Res. 2010;156:237-48. doi: 10.1007/978-1-4419-6518-9_18.
7
8
Fertility and reproductive considerations in premenopausal patients with breast cancer.
Cancer Control. 2010 Jul;17(3):162-72. doi: 10.1177/107327481001700304.
9
Laparoscopic ovarian tissue harvesting for cryopreservation: an effective and safe procedure for fertility preservation.
Eur J Obstet Gynecol Reprod Biol. 2010 Sep;152(1):68-72. doi: 10.1016/j.ejogrb.2010.05.034. Epub 2010 Jul 1.
10
State laws and regulations addressing third-party reimbursement for infertility treatment: implications for cancer survivors.
Fertil Steril. 2011 Jan;95(1):72-8. doi: 10.1016/j.fertnstert.2010.05.017. Epub 2010 Jun 23.

文献AI研究员

20分钟写一篇综述,助力文献阅读效率提升50倍。

立即体验

用中文搜PubMed

大模型驱动的PubMed中文搜索引擎

马上搜索

文档翻译

学术文献翻译模型,支持多种主流文档格式。

立即体验