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对患有主要慢性儿童皮肤病的儿科患者的生活质量评估。

Assessment of the quality of life of pediatric patients with the major chronic childhood skin diseases.

作者信息

Manzoni Ana Paula Dornelles da Silva, Pereira Rita Langie, Townsend Roberta Zaffari, Weber Magda Blessmann, Nagatomi Aline Rodrigues da Silva, Cestari Tania Ferreira

机构信息

Universidade Federal de Ciências da Saúde de Porto Alegre, RS, Brazil.

出版信息

An Bras Dermatol. 2012 May-Jun;87(3):361-8. doi: 10.1590/s0365-05962012000300002.

DOI:10.1590/s0365-05962012000300002
PMID:22714749
Abstract

BACKGROUND

The skin is the primary interface of the human being with the external environment and the presence of skin diseases can have substantial effects on the quality of life.

OBJECTIVE

This study aims to make a comparative evaluation of the quality of life of pediatric patients with atopic dermatitis, psoriasis and vitiligo and correlate the findings with the total body surface and the areas with the disease exposed to view.

METHODS

The sample consisted of 118 patients with atopic dermatitis, vitiligo and psoriasis, aged between 5 and 16 years, who were asked to answer the Children's Dermatology Life Quality Index (CDLQI) questionnaire. A dermatological examination for the measurement of total body surface affected by the disease was performed.

RESULTS

The three groups showed an impaired quality of life. Patients with atopic dermatitis and psoriasis showed a significantly greater impact on the QoL than the group with vitiligo. There is a trend towards impaired quality of life in patients from the three groups of dermatoses, which is related to increments in both the total affected area and affected area exposed to view (r = 0.428 and p <0.001, r = 0.381 and p <0.001, respectively).

CONCLUSION

The assessed children had impaired quality of life. However, there is a significantly greater impact in the groups with atopic dermatitis and psoriasis than in the group with vitiligo. This may be due to lack of symptoms in vitiligo and the fact this group presented a statistically smaller affected body surface than the other two groups.

摘要

背景

皮肤是人类与外部环境的主要界面,皮肤病的存在会对生活质量产生重大影响。

目的

本研究旨在对特应性皮炎、银屑病和白癜风患儿的生活质量进行比较评估,并将结果与全身表面积以及暴露在外的患病部位相关联。

方法

样本包括118例年龄在5至16岁之间的特应性皮炎、白癜风和银屑病患者,他们被要求回答儿童皮肤病生活质量指数(CDLQI)问卷。进行了皮肤病学检查以测量疾病累及的全身表面积。

结果

三组患者的生活质量均受损。特应性皮炎和银屑病患者的生活质量受影响程度明显高于白癜风组。三组皮肤病患者的生活质量均有受损趋势,这与总受累面积和暴露在外的受累面积增加有关(分别为r = 0.428,p <0.001;r = 0.381,p <0.001)。

结论

所评估的儿童生活质量受损。然而,特应性皮炎和银屑病组的影响明显大于白癜风组。这可能是由于白癜风缺乏症状,且该组患者的受累体表面积在统计学上小于其他两组。

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