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巴西南部一家皮肤科卓越中心的儿科患者生活质量评估。

Assessment of the quality of life of pediatric patients at a center of excellence in dermatology in southern Brazil.

作者信息

Weber Magda Blessmann, Lorenzini Daniel, Reinehr Clarissa Prieto Herman, Lovato Bárbara

机构信息

Dermatology Service, Universidade Federal de Ciências da Saúde de Porto Alegre, RS, Brazil.

出版信息

An Bras Dermatol. 2012 Sep-Oct;87(5):697-702. doi: 10.1590/s0365-05962012000500004.

Abstract

BACKGROUND

Skin diseases cause negative impact on the emotional state, social relationships and daily activities, due to the stigma caused by the appearance of the lesions.

OBJECTIVE

This study aimed to assess the quality of life of pediatric patients with skin diseases attending a dermatology service, compare the scores obtained among the dermatoses found in the sample and associate them to the variables, in addition to observing how the skin disease specifically affects quality of life.

METHODS

Cross-sectional study, with patients between 5 and 16 years attending the Dermatology Service of the University of Health Sciences of Porto Alegre, Brazil, between July 2010 and February 2011. The data collection instruments were the Children's Dermatology Life Quality Index questionnaire and the AUEQI questionnaire.

RESULTS

A total of 161 patients were interviewed, with mean age of 9,66 years. The main dermatoses were atopic dermatitis (29.8%), warts (13%) and molluscum contagiosum (7.5%). Chronic diseases (73.9%) were the most prevalent. The overall mean Children's Dermatology Life Quality Index score was 5.01 for chronic dermatoses and 2.07 for acute illnesses, indicating a compromised quality of life among chronically ill patients. The comparison between the scores obtained with the AUEQI scale and the Children's Dermatology Life Quality Index scores indicates that the overall quality of life is less affected than the specific quality of life related to the dermatosis.

CONCLUSIONS

The data presented reinforce how important it is that the patients, their families and caregivers understand the symptoms, triggers and treatment of the skin disease in question. This information facilitates adherence to the treatment and justifies the conduct adopted by the dermatologist.

摘要

背景

由于皮损外观所带来的耻辱感,皮肤疾病会对患者的情绪状态、社会关系和日常活动产生负面影响。

目的

本研究旨在评估皮肤科门诊儿科皮肤病患者的生活质量,比较样本中所发现的各类皮肤病的得分,并将其与各变量相关联,此外还要观察皮肤病如何具体影响生活质量。

方法

采用横断面研究,研究对象为2010年7月至2011年2月期间在巴西阿雷格里港健康科学大学皮肤科门诊就诊的5至16岁患者。数据收集工具为儿童皮肤病生活质量指数问卷和AUEQI问卷。

结果

共访谈了161名患者,平均年龄为9.66岁。主要的皮肤病有特应性皮炎(29.8%)、疣(13%)和传染性软疣(7.5%)。慢性病(73.9%)最为常见。慢性皮肤病的儿童皮肤病生活质量指数总体平均得分为5.01,急性病为2.07,表明慢性病患者的生活质量受到损害。AUEQI量表得分与儿童皮肤病生活质量指数得分的比较表明,总体生活质量受影响程度低于与皮肤病相关的特定生活质量。

结论

所呈现的数据进一步证明了患者、其家人和护理人员了解相关皮肤病的症状、诱发因素和治疗方法的重要性。这些信息有助于提高治疗依从性,并证明皮肤科医生所采取措施的合理性。

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