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儿科肿瘤治疗阶段家庭系统的运作情况。

Functioning of family system in pediatric oncology during treatment phase.

作者信息

Perricone Giovanna, Polizzi Concetta, Morales Maria Regina, Marino Santo, Scacco Cinzia Favara

机构信息

Department of Psychology, University of Palermo, Viale Delle Scienze, Palermo, Italy.

出版信息

Pediatr Hematol Oncol. 2012 Oct;29(7):652-62. doi: 10.3109/08880018.2012.695439. Epub 2012 Jun 25.

Abstract

The study focuses on parents' psychological implications caused by the treatment of their children suffering from tumor. It investigates some specific mothers' resource factors such as their strategies of coping and the perception of their own family functioning in terms of cohesion and adaptability. The study was performed with 34 mothers of children suffering from acute lymphoblastic leukemia (ALL), during the treatment phase. The used tools were the Coping Orientation to Problem Experienced--New Italian Version, to investigate coping strategies, and the Family Adaptability and Cohesion Evaluation Scale-III, to analyze both real and ideal perception of family functioning. The data related to coping, show how the involved mothers tend to mainly use the strategies of positive aptitude, orientation toward problem and social support (F = 99.88, df = 4, P < .01). The family functioning, in terms of adaptability, is described as chaotic relating to both the real (χ(2) = 13.29, df = 3, P = .004) and ideal (χ(2) = 11.52, df = 2, P = .003) family, whereas in terms of cohesion, it is perceived as chiefly disengaged in the real family (χ(2) = 12.3, df = 3, P = .006) and as enmeshed in the ideal one (χ(2) = 12.58, df = 3, P = .006). Statistically positive correlations were only detected between adaptability and avoidance (r = 0.49, P < .01); adaptability and orientation toward problem (r = 0.36, P < .05); and adaptability and transcendent orientation (r = -0.04, P < .05). Despite the critical situation, the mothers have shown optimistic view, care for problem management and capability to ask for help. These coping strategies allow the therapeutic alliance between families and health care workers, so useful for the quality of childcare.

摘要

该研究聚焦于孩子患肿瘤的父母所面临的心理影响。它调查了一些特定母亲的资源因素,比如她们的应对策略以及对自身家庭在凝聚力和适应性方面功能运作的认知。该研究对34名急性淋巴细胞白血病(ALL)患儿的母亲在治疗阶段进行。所使用的工具包括用于调查应对策略的《应对问题的定向——新意大利语版本》,以及用于分析家庭功能的实际和理想认知的《家庭适应性和凝聚力评估量表III》。与应对相关的数据表明,参与研究的母亲往往主要采用积极态度、问题导向和社会支持的策略(F = 99.88,自由度 = 4,P <.01)。在适应性方面,家庭功能在实际家庭(χ(2) = 13.29,自由度 = 3,P =.004)和理想家庭(χ(2) = 11.52,自由度 = 2,P =.003)中都被描述为混乱;而在凝聚力方面,实际家庭中主要被认为是疏离的(χ(2) = 12.3,自由度 = 3,P =.006),理想家庭中则被认为是纠缠的(χ(2) = 12.58,自由度 = 3,P =.006)。仅在适应性与回避(r = 0.49,P <.01)、适应性与问题导向(r = 0.36,P <.05)以及适应性与超验导向(r = -0.04,P <.05)之间检测到统计学上的正相关。尽管情况危急,但母亲们表现出了乐观的态度、对问题处理的关注以及寻求帮助的能力。这些应对策略有助于家庭与医护人员之间建立治疗联盟,这对儿童护理质量非常有用。

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