Elisabeth Müller Veronika, Schmacke Norbert, Kolip Petra, Berger Bettina
Hochschule 21, Studiengang Physiotherapie DUAL, Buxtehude.
Z Evid Fortbild Qual Gesundhwes. 2012;106(4):290-4. doi: 10.1016/j.zefq.2012.03.001. Epub 2012 Apr 16.
In 2004 the German Institute for Quality and Efficiency in Health Care (IQWiG) was given a statutory mandate to prepare and publish evidence-based information for consumers and patients. The current study investigated the extent to which the IQWiG's "Change of Life" information pack was found to be both comprehensible and useful by users. A total of 41 qualitative, semi-structured interviews were conducted with menopausal women. The partial analysis presented here is based solely on the "Decision Aid" part of the information pack. For many women the information contained in the Decision Aid was new and the manner of presentation unusual. In the sample investigated here the Decision Aid was used rather as a confirmation of decisions that had already been made than as an aid in the decision-making process. Where it was not possible to harmonise the scientific evidence presented with the individual's own opinion, the decision-making conflict was intensified. Balancing of individual preferences against study results proved to be difficult for two reasons: first, the unusual manner of presentation and second, the two contrasting poles of "science-based information" and "own preferences", which were not regarded as being of equal significance. This conflict represents a fundamental problem in evidence-based decision aids.
2004年,德国医疗质量与效率研究所(IQWiG)被赋予一项法定任务,即编写并向消费者和患者发布循证信息。当前的研究调查了IQWiG的“生活变化”信息包在多大程度上被用户认为既易懂又有用。对绝经后女性进行了总共41次定性的半结构化访谈。此处呈现的部分分析仅基于信息包中的“决策辅助”部分。对许多女性而言,决策辅助中包含的信息是新的,且呈现方式不同寻常。在本研究的样本中,决策辅助更多地被用作对已做出决策的确认,而非决策过程中的辅助工具。当无法使所呈现的科学证据与个人观点相协调时,决策冲突就会加剧。将个人偏好与研究结果进行权衡被证明很困难,原因有二:其一,呈现方式不同寻常;其二,“基于科学的信息”和“个人偏好”这两个对立的极端,人们并不认为它们具有同等重要性。这种冲突是循证决策辅助工具中的一个根本问题。