Johnson Julia, Leigh P Nigel, Shaw Christopher E, Ellis Cathy, Burman Rachel, Al-Chalabi Ammar
Speech and Language Therapy Department, King's College Hospital, London, UK.
Amyotroph Lateral Scler. 2012 Oct;13(6):555-9. doi: 10.3109/17482968.2012.704925. Epub 2012 Aug 7.
Our objective was to examine the pleasure derived from eating in patients with advanced ALS and how this affects advice to have a gastrostomy. Patients with advanced ALS completed a visual analogue scale indicating the pleasure they derived from eating. Data were also collected on the severity of swallow using the Hillel scale, the independent feeding status, and on whether gastrostomy was accepted or not. The findings from 38 consecutive patients indicate that pleasure derived from eating is a powerful indicator of a person's acceptance of gastrostomy. In conclusion, the study showed that a simple analogue scale is quick and practical in a clinical setting even in severely compromised people with ALS and that the eating pleasure score was a strong predictor of the final decision to accept gastrostomy placement (p = 12.2 = 10(-4)).
我们的目标是研究晚期肌萎缩侧索硬化症（ALS）患者进食时获得的愉悦感，以及这如何影响关于进行胃造口术的建议。晚期ALS患者完成了视觉模拟量表，表明他们从进食中获得的愉悦感。还使用希勒尔量表收集了吞咽严重程度、独立进食状态以及是否接受胃造口术的数据。对38例连续患者的研究结果表明，进食带来的愉悦感是一个人接受胃造口术的有力指标。总之，该研究表明，即使在严重受损的ALS患者中，一个简单的模拟量表在临床环境中也是快速且实用的，并且进食愉悦感评分是接受胃造口术最终决定的有力预测指标（p = 12.2 = 10(-4)）。
