City University of New York Graduate School and University Center, NY, USA.
J Appl Res Intellect Disabil. 2012 Sep;25(5):484-94. doi: 10.1111/j.1468-3148.2012.00695.x. Epub 2012 Jul 9.
This study investigated associations between the presence of a child with autism or Asperger's disorder in the family, family functioning and grandmother experiences with the goal of better understanding grandparent involvement in the lives of grandchildren on the autism spectrum and their families.
Mothers and grandmothers of children who were either typically developing or on the autism spectrum completed parallel forms of a grandparent involvement measure. Mothers reported on the functioning of the immediate family. Data were analysed via multilevel modelling with mother-grandmother dyads as the unit of observation.
Autism spectrum disorders in children were associated with more flexible family functioning, lower levels of family satisfaction, greater grandmother difficulties and more grandmother information needs.
Participation of grandparents in diagnostic and treatment meetings and increased communication among family members may facilitate grandparent support and involvement in families with a child on the autism spectrum.
本研究旨在调查家庭中是否存在自闭症或阿斯伯格障碍儿童、家庭功能以及祖母的经验之间的关联,目的是更好地理解自闭症谱系儿童及其家庭中祖父母的参与度。
正常发育或自闭症谱系儿童的母亲和祖母完成了一份关于祖父母参与度的平行问卷。母亲报告了家庭的功能。通过多层次建模分析数据,以母亲-祖母对子为观察单位。
儿童自闭症谱系障碍与家庭功能更具灵活性、家庭满意度较低、祖母面临更多困难以及祖母对信息的需求更大相关。
让祖父母参与诊断和治疗会议,并增加家庭成员之间的沟通,可能有助于支持和参与自闭症谱系儿童的家庭。