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在人工耳蜗的陪伴下成长:教育、职业与归属感。

Growing up with a cochlear implant: education, vocation, and affiliation.

作者信息

Spencer Linda J, Tomblin J Bruce, Gantz Bruce J

机构信息

Department of Special Education/Communication Disorders and Sciences, New Mexico State University, 2850 Weddell Street, Las Cruces, NM 88003-8001, USA.

出版信息

J Deaf Stud Deaf Educ. 2012 Fall;17(4):483-98. doi: 10.1093/deafed/ens024. Epub 2012 Sep 4.

Abstract

The long-term educational/vocational, affiliation, and quality-of-life outcomes of the first and second cohorts of children with bilateral, profound hearing loss who received cochlear implants under a large National Institutes of Health-funded study was investigated in 41 of 61 eligible participants. Educational and vocational outcomes were collected from user survey data. Affiliation and quality-of-life data were collected from the Satisfaction-with-Life scale and the Deaf Identity Scale. Qualitative results indicated that compared with their hearing, adult-age peers, this group obtained high educational achievement, and they reported a very high satisfaction of life. With respect to forming an identity in these first 2 cohorts of cochlear implant users, we found that most of the individuals endorsed a dual identity, which indicates they feel just as comfortable with Deaf individuals as they do with hearing individuals. Quantitative results revealed a significant relationship between ability to hear and ability to speak, in addition to consistency of device use. Additional relationships were found between mother's and the individual's educational statuses, hearing scores, and communication system used. Younger individuals scored higher on satisfaction-with-life measures, and they also tended to endorse a dual identity more often. Taken together, these findings diminish concerns that profoundly deaf individuals growing up with cochlear implants will become culturally bereft and unable to function in the hearing world.

摘要

在一项由美国国立卫生研究院资助的大型研究中,对61名符合条件的双侧极重度听力损失儿童中的41名进行了调查,这些儿童接受了人工耳蜗植入,调查内容包括首批和第二批儿童的长期教育/职业、社交关系及生活质量结果。教育和职业结果是从用户调查数据中收集的。社交关系和生活质量数据是从生活满意度量表和聋人身份量表中收集的。定性结果表明,与听力正常的成年同龄人相比,这群儿童取得了很高的教育成就,并且他们对生活的满意度非常高。关于这首批2组人工耳蜗植入用户的身份形成,我们发现大多数人认可双重身份,这表明他们与聋人相处和与听力正常的人相处一样自在。定量结果显示,除了设备使用的一致性外,听力能力和说话能力之间存在显著关系。还发现母亲和个人的教育状况、听力分数以及所使用的沟通系统之间存在其他关联。较年轻的个体在生活满意度测量中得分较高,并且他们也更倾向于认可双重身份。综合来看,这些发现减少了人们对植入人工耳蜗长大的极重度聋人会在文化上丧失归属感且无法在听力世界中正常生活的担忧。

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