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关于临终关怀质量的种族/民族观点。

Racial/ethnic perspectives on the quality of hospice care.

作者信息

Campbell Cathy L, Baernholdt Marianne, Yan Guofen, Hinton Ivora D, Lewis Erica

机构信息

The University of Virginia, School of Nursing, Charlottesville, VA 22908, USA.

出版信息

Am J Hosp Palliat Care. 2013 Jun;30(4):347-53. doi: 10.1177/1049909112457455. Epub 2012 Sep 4.

DOI:10.1177/1049909112457455
PMID:22952128
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3674172/
Abstract

Diversity in the US population is increasing, and evaluating the quality of culturally sensitive hospice care is important. A survey design was used to collect data from 743 patients enrolled in hospice or their family members or caregivers. Race/ethnicity was not significantly associated with any of the hospice interventions or outcomes. Patients were less likely to be satisfied with the overall hospice care (OR = 0.23, 95% CI = 0.065-0.796, P = .021) compared to other type of respondents.  Satisfaction with emotional support was substantially associated with the increased likelihood of satisfaction with pain management (OR = 3.82, 95% CI = 1.66-8.83, P = .002), satisfaction with other symptom management (OR = 6.17, 95% CI = 2.80-13.64, P < .001), and of overall satisfaction with hospice care (OR = 20.22, 95% CI = 8.64-47.35, P < .001).

摘要

美国人口的多样性正在增加,评估具有文化敏感性的临终关怀服务质量很重要。采用调查设计从743名临终关怀患者或其家庭成员或护理人员中收集数据。种族/民族与任何临终关怀干预措施或结果均无显著关联。与其他类型的受访者相比,患者对临终关怀服务总体满意度较低(OR = 0.23,95% CI = 0.065 - 0.796,P = 0.021)。对情感支持的满意度与疼痛管理满意度增加的可能性(OR = 3.82,95% CI = 1.66 - 8.83,P = 0.002)、对其他症状管理的满意度(OR = 6.17,95% CI = 2.80 - 13.64,P < 0.001)以及对临终关怀服务总体满意度(OR = 20.22,95% CI = 8.64 - 47.35,P < 0.001)密切相关。

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本文引用的文献

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2
Chronic stress, daily stressors, and circulating inflammatory markers.慢性压力、日常压力源与循环炎症标志物。
Health Psychol. 2012 Mar;31(2):264-8. doi: 10.1037/a0025536. Epub 2011 Sep 19.
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The PEACE Project: identification of quality measures for hospice and palliative care.PEACE 项目:临终关怀和姑息治疗质量指标的确定。
J Palliat Med. 2010 Dec;13(12):1451-9. doi: 10.1089/jpm.2010.0238.
4
Establishing a regional, multisite database for quality improvement and service planning in community-based palliative care and hospice.建立一个区域性、多站点的数据库,用于改善社区姑息治疗和临终关怀服务质量和规划服务。
J Palliat Med. 2010 Aug;13(8):1013-20. doi: 10.1089/jpm.2010.0017.
5
The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire.开发和验证一种新的问卷,以衡量患者和家属对临终关怀的满意度:加拿大医疗保健评估项目(CANHELP)问卷。
Palliat Med. 2010 Oct;24(7):682-95. doi: 10.1177/0269216310373168. Epub 2010 Jul 6.
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Race, ethnicity, and pain among the U.S. adult population.美国成年人口中的种族、族裔与疼痛
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