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不止是信息:一项关于父母对极早产儿新生儿重症监护看法的定性研究

More than information: a qualitative study of parents' perspectives on neonatal intensive care at the extremes of prematurity.

作者信息

Pepper Dawn, Rempel Gwen, Austin Wendy, Ceci Christine, Hendson Leonora

机构信息

Royal Alexandra Hospital, Alberta, Canada.

出版信息

Adv Neonatal Care. 2012 Oct;12(5):303-9. doi: 10.1097/ANC.0b013e318265b3d5.

DOI:10.1097/ANC.0b013e318265b3d5
PMID:22964607
Abstract

PURPOSE

To describe parental perceptions of decision making concerning their extremely premature newborns who received care in a level III neonatal intensive care unit (NICU).

SUBJECTS

Seven parents of preterm infants who were born at 24 to 26 weeks' gestation at a western Canadian tertiary NICU.

DESIGN

Qualitative, interpretive description, semistructured interviews.

METHODS

The first author conducted interviews with both parents together or the mother alone. Interviews were recorded, transcribed, and analyzed.

RESULTS

Three main themes related to decision making, culture shock, and relationships emerged: (1) decision making before and in the NICU: moving beyond information, (2) culture shock in the NICU: plunging into a strange land, and (3) relationships in the NICU: enduring in a strange land.

CONCLUSIONS

Although information and decision making are interconnected and fundamental to parents' experiences of their preterm baby's NICU stay, they also identified the culture and language of the NICU and genuine relationships formed with healthcare professionals as significantly influencing their experiences.

摘要

目的

描述父母对于其在三级新生儿重症监护病房(NICU)接受治疗的极早产新生儿决策的看法。

对象

加拿大西部一家三级NICU中7名孕24至26周出生的早产儿的父母。

设计

定性、解释性描述、半结构化访谈。

方法

第一作者对父母双方或仅对母亲进行访谈。访谈进行录音、转录和分析。

结果

出现了与决策、文化冲击和关系相关的三个主要主题:(1)NICU之前和在NICU中的决策:超越信息,(2)NICU中的文化冲击:陷入陌生之地,(3)NICU中的关系:在陌生之地持久维系。

结论

尽管信息和决策相互关联且对于父母体验其早产儿在NICU的住院经历至关重要,但他们也认为NICU的文化和语言以及与医护人员建立的真挚关系对他们的体验有重大影响。

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