NTNU Social Research, Dragvoll Allé 38B, 7491, Trondheim, Norway.
Health Care Anal. 2012 Dec;20(4):367-84. doi: 10.1007/s10728-012-0225-0.
This text presents an overview of the bioethical debate on pediatric cochlear implants and pays particular attention to the analysis of the Deaf critique of implantation. It dismisses the idea that Deaf concerns are primarily about the upholding of Deaf culture and sign language. Instead it is argued that Deaf skepticism about child rehabilitation after cochlear surgery is well founded. Many Deaf people have lived experiences as subjects undergoing rehabilitation. It is not the cochlear technology in itself they view as problematic, but rather the subsequent rehabilitation process. Because they themselves have experienced what they describe as harmful effects which relate above all to the idea of normalization, they have articulated worries for the new generations of deaf children in need of rehabilitation following cochlear implant surgery. These insights have attracted little attention, but could represent relevant ethical questions of which both practitioners and researchers in the field of implantation might be aware.
本文概述了儿科人工耳蜗植入的生命伦理争议,并特别关注了对植入的聋人批评的分析。文中驳斥了这样一种观点,即聋人的关切主要是关于维护聋人文化和手语。相反,有人认为,聋人对耳蜗手术后儿童康复的怀疑是有充分依据的。许多聋人都有过作为康复对象的生活经历。他们认为有问题的不是耳蜗技术本身,而是随后的康复过程。因为他们自己经历了他们所说的与正常化观念有关的有害影响,所以他们对需要接受耳蜗植入手术后康复的新一代聋童表示担忧。这些观点虽然没有引起太多关注,但可能代表了相关的伦理问题,这是植入领域的从业者和研究人员都应该意识到的。