Academic Palliative and Supportive Care Studies Group, Division of Health Service Research, University of Liverpool, Liverpool, UK.
Eur J Cancer Care (Engl). 2013 Jan;22(1):97-106. doi: 10.1111/ecc.12003. Epub 2012 Sep 17.
There is a paucity of research exploring patients' and their informal carers' experience of coping with and factors impacting on the lung cancer experience. This study aims to explore how patients and their informal carers cope with a diagnosis of lung cancer and describe the key factors that mediate distress in this population in order that they may be better supported in the future. This was a qualitative study employing semi-structured interviews and framework analysis to elicit the experience of 37 patients with lung cancer and 23 primary carers regarding their coping with and factors influencing patient/carer distress. The findings illustrate that participants used both emotional- and problem-focused coping strategies, including accepting the reality of lung cancer, adopting a positive attitude/fighting spirit, denial, avoidance and distraction and information seeking. Maintaining normality was also important. Key factors that mediate the lung cancer experience were also identified including hope, social network, prior experience of cancer and other chronic illnesses, the competing coping strategies of patients and their primary carers, the unpredictable nature of patients' behaviour, changing symptomatology, the perceived attitudes of health professionals and the impact of perceived delays in diagnosis. This study provides important insights into how patients with lung cancer and their primary carers might be better supported.
针对肺癌患者及其非专业照护者应对疾病的体验，以及影响其体验的因素，目前的研究还比较匮乏。本研究旨在探索肺癌患者及其非专业照护者的应对方式，并描述影响这一人群产生痛苦的关键因素，以便今后能为他们提供更好的支持。本研究采用定性研究方法，通过半结构式访谈和框架分析，共纳入 37 名肺癌患者和 23 名主要照护者，了解他们在应对疾病和影响患者/照护者痛苦的因素方面的体验。研究结果表明，参与者使用了情绪和问题聚焦的应对策略，包括接受肺癌的现实、保持积极的态度/战斗精神、否认、回避和转移注意力以及寻求信息。保持常态也很重要。还确定了影响肺癌体验的关键因素，包括希望、社会网络、先前的癌症和其他慢性疾病经历、患者及其主要照护者的相互竞争的应对策略、患者行为的不可预测性、症状的变化、医护人员的态度感知以及对诊断延误的影响。本研究为如何更好地支持肺癌患者及其主要照护者提供了重要的见解。
