Lancaster University, UK.
Dementia (London). 2013 Sep;12(5):635-51. doi: 10.1177/1471301212440873. Epub 2012 May 15.
A growing body of literature suggests that the social context of experiencing dementia at a younger age may influence carers' and particularly partners' subjective experience and coping strategies. The current paper aims to explore the coping strategies adopted by six carers in order to adapt to changes in their relationship with their partner with young onset dementia. All were recruited from the north west of England and interpretative phenomenological analysis was used to analyse the data. Four major themes were evident: (1) 'this is not happening': the use of denial as a coping strategy; (2) 'let's not have anymore of this demeaning [treatment]': stigma in young onset dementia; (3) 'I've had to fight every inch': struggling to maintain control of events and emotions; (4) 'what will become of me?': carers' adaptation to loss. Comparisons with existing literature are made and implications for clinical practice are considered.
越来越多的文献表明，在较年轻时经历痴呆症的社会环境可能会影响照顾者，尤其是配偶的主观体验和应对策略。本文旨在探讨六位照顾者所采用的应对策略，以适应其与患有早发性痴呆症的伴侣关系的变化。所有参与者均来自英格兰西北部，采用解释性现象学分析方法对数据进行分析。有四个主要主题：（1）“这没有发生”：否认是一种应对策略；（2）“我们不要再这样被贬低了”：早发性痴呆症的耻辱感；（3）“我不得不全力以赴”：努力控制事件和情绪；（4）“我将何去何从？”：照顾者对失去的适应。并与现有文献进行了比较，考虑了对临床实践的影响。
