Sangath Centre, 841/1 Alto-Porvorim, Bardez, Goa 403521, India.
Asian J Psychiatr. 2012 Sep;5(3):258-65. doi: 10.1016/j.ajp.2012.06.002. Epub 2012 Jul 28.
Involving persons with schizophrenia and their families in designing, implementing and evaluating mental health services is increasingly emphasised. However, there is little information on desired outcomes from the perspectives of these stakeholders from low and middle income countries (LMIC).
To explore and define outcomes desired by persons with schizophrenia and their primary caregivers from their perspectives.
In-depth interviews were held with 32 persons with schizophrenia and 38 primary caregivers presenting for care at one rural and one semi-urban site in India. Participants were asked what changes they desired in the lives of persons affected by the illness and benefits they expected from treatment. Data was analysed using thematic and content analysis.
Eleven outcomes were desired by both groups: symptom control; employment/education; social functioning; activity; fulfilment of duties and responsibilities; independent functioning; cognitive ability; management without medication; reduced side-effects; self-care; and self-determination. Social functioning, employment/education and activity were the most important outcomes for both groups; symptom control and cognitive ability were more important to persons with schizophrenia while independent functioning and fulfilment of duties were more important to caregivers.
Interventions for schizophrenia in India should target both clinical and functional outcomes, addressing the priorities of both affected persons and their caregivers. Their effectiveness needs to be evaluated independently from both perspectives.
越来越强调让精神分裂症患者及其家属参与设计、实施和评估精神卫生服务。然而，来自中低收入国家（LMIC）的这些利益相关者对预期结果的信息却很少。
从精神分裂症患者及其主要照顾者的角度出发，探讨和定义他们所期望的结果。
在印度的一个农村和一个半城市地区，对 32 名精神分裂症患者和 38 名主要照顾者进行了深入访谈。参与者被问到他们希望患者生活发生哪些变化以及他们期望从治疗中获得哪些益处。使用主题和内容分析对数据进行分析。
两组都希望有 11 个结果：症状控制；就业/教育；社会功能；活动；履行职责和责任；独立功能；认知能力；无药物治疗管理；减少副作用；自我护理；和自我决定。社会功能、就业/教育和活动对两组都很重要；症状控制和认知能力对精神分裂症患者更为重要，而独立功能和履行职责对照顾者更为重要。
印度的精神分裂症干预措施应针对临床和功能结果，满足患者及其照顾者的优先事项。需要从这两个角度独立评估其有效性。
