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本文引用的文献

1
Challenges of establishing a Community Advisory Board (CAB) in a low-income, low-resource setting: experiences from Bagamoyo, Tanzania.在低收入、资源匮乏地区建立社区咨询委员会(CAB)的挑战:来自坦桑尼亚巴加莫约的经验
Health Res Policy Syst. 2009 Jun 17;7:16. doi: 10.1186/1478-4505-7-16.
2
Ethical and scientific implications of the globalization of clinical research.临床研究全球化的伦理与科学影响
N Engl J Med. 2009 Feb 19;360(8):816-23. doi: 10.1056/NEJMsb0803929.
3
Building community partnerships: case studies of Community Advisory Boards at research sites in Peru, Zimbabwe, and Thailand.建立社区伙伴关系:秘鲁、津巴布韦和泰国研究站点社区咨询委员会的案例研究
Clin Trials. 2008;5(2):147-56. doi: 10.1177/1740774508090211.
4
Beginning community engagement at a busy biomedical research programme: experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya.在一个繁忙的生物医学研究项目中开展社区参与:来自肯尼亚基利菲的肯尼亚医学研究协会-英国惠康信托基金会海岸和全球健康研究中心研究项目的经验
Soc Sci Med. 2008 Sep;67(5):721-33. doi: 10.1016/j.socscimed.2008.02.007. Epub 2008 Apr 2.
5
Taking social relationships seriously: lessons learned from the informed consent practices of a vaccine trial on the Kenyan Coast.认真对待社会关系:从肯尼亚海岸一项疫苗试验的知情同意实践中吸取的教训。
Soc Sci Med. 2008 Sep;67(5):708-20. doi: 10.1016/j.socscimed.2008.02.003. Epub 2008 Mar 24.
6
Grand challenges in global health: community engagement in research in developing countries.全球卫生领域的重大挑战:发展中国家社区参与研究
PLoS Med. 2007 Sep;4(9):e273. doi: 10.1371/journal.pmed.0040273.
7
The benefits of participatory methodologies to develop effective community dialogue in the context of a microbicide trial feasibility study in Mwanza, Tanzania.在坦桑尼亚姆万扎进行的一项杀微生物剂试验可行性研究中,参与式方法对于开展有效的社区对话的益处。
BMC Public Health. 2007 Jul 2;7:133. doi: 10.1186/1471-2458-7-133.
8
Valid consent for genomic epidemiology in developing countries.发展中国家基因组流行病学的有效同意。
PLoS Med. 2007 Apr;4(4):e95. doi: 10.1371/journal.pmed.0040095.
9
Ethics in public health research: protecting human subjects: the role of community advisory boards.公共卫生研究中的伦理:保护人类受试者:社区咨询委员会的作用
Am J Public Health. 2004 Jun;94(6):918-22. doi: 10.2105/ajph.94.6.918.
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What makes clinical research in developing countries ethical? The benchmarks of ethical research.是什么让发展中国家的临床研究符合伦理道德?伦理研究的基准。
J Infect Dis. 2004 Mar 1;189(5):930-7. doi: 10.1086/381709. Epub 2004 Feb 17.

泰缅边境的社区参与:基本原理、经验和教训。

Community engagement on the Thai-Burmese border: rationale, experience and lessons learnt.

机构信息

Shoklo Malaria Research Unit, Mae Sot, Tak, 63110 Thailand ; Mahidol Oxford Tropical Medicine Research Unit, Faculty of Tropical Medicine, Mahidol University, Bangkok, 10400 Thailand ; Centre for Tropical Medicine, Nuffield Department of Clinical Medicine, University of Oxford, OX3 7LJ, United Kingdom.

出版信息

Int Health. 2010 Jun;2(2):123-9. doi: 10.1016/j.inhe.2010.02.001.

DOI:10.1016/j.inhe.2010.02.001
PMID:22984375
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3442337/
Abstract

Community engagement is increasingly promoted in developing countries, especially in international health research, but there is little published experience. The Shoklo Malaria Research Unit (SMRU) conducts research with refugees, migrant workers, displaced people, and day migrants on the Thai-Burmese border, and has recently facilitated the set up of the Tak Province Border Community Ethics Advisory Board (T-CAB). Valuable lessons have been learnt from consultation with the T-CAB especially in the area of participant recruitment and the informed consent process. A lot of new research questions have emerged from consultation with the T-CAB. This paper describes our experience, lessons learnt and the unique challenges faced working with the T-CAB from its initial conception to date. We conclude that consultation with the T-CAB has made improvements in our research in particular operational and ethical aspects of our studies.

摘要

社区参与在发展中国家越来越受到推崇,特别是在国际卫生研究领域,但发表的经验却很少。肖克利疟疾研究单位(SMRU)在泰国-缅甸边境与难民、移民工人、流离失所者和日移民进行研究,并最近促成了泰国Tak 省边境社区伦理咨询委员会(T-CAB)的成立。通过与 T-CAB 的协商,我们学到了宝贵的经验,特别是在参与者招募和知情同意过程方面。通过与 T-CAB 的协商,出现了许多新的研究问题。本文描述了我们的经验、教训以及在与 T-CAB 合作方面面临的独特挑战,从最初的构想至今。我们得出结论,与 T-CAB 的协商改进了我们的研究,特别是我们研究的操作和伦理方面。