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参与一项DNA完整性队列研究的共同创造与参与。

Co-creation and engagement in a DNA integrity cohort study.

作者信息

Parker L Lynette, Bonner Chantel M, Sobol Robert W, Arrieta Martha I

机构信息

Center for Healthy Communities, Frederick P. Whiddon College of Medicine, University of South Alabama, Mobile, AL, USA.

Mitchell Cancer Institute, University of South Alabama, Mobile, AL, USA.

出版信息

J Clin Transl Sci. 2023 May 22;7(1):e122. doi: 10.1017/cts.2023.556. eCollection 2023.

DOI:10.1017/cts.2023.556
PMID:37313377
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10260344/
Abstract

INTRODUCTION

The partnership between a research community engagement team (CE Team) and a community advisory board (CAB) formed the basis for bidirectional communication in developing resources for participant recruitment in a DNA integrity study. Engaging with a minoritized community, this partnership focused on respect, accessibility, and expanded engagement.

METHODS

A ten-member CAB, working in two groups defined by meeting time convenience, provided insight and feedback to the CE Team in the creation of recruitment and consent materials, via an iterative design process in which one CAB group reviewed and enhanced materials, and the second group tested and refined them further. The continuous analysis of CE Team notes from CAB meetings captured information needed both for materials refinement and implementation of CAB-suggested activities.

RESULTS

The partnership resulted in the co-creation of recruitment and consent materials that facilitated the enrollment of 191 individuals into the study. The CAB encouraged and assisted in expanded engagement inclusive of community leaders. This broader engagement provided information about the DNA integrity study to community decision-makers as well as responded to questions and concerns about the research. The bidirectional communication between the CAB and the CE Team encouraged the researchers to consider topics and research interests related to the current study but also responsive to community concerns.

CONCLUSIONS

The CAB helped the CE Team develop a better understanding of the language of partnership and respect. In this way, the partnership opened doors for expanded community engagement and effective communication with potential study participants.

摘要

引言

研究社区参与团队(CE团队)与社区咨询委员会(CAB)之间的合作关系,构成了在一项DNA完整性研究中开发参与者招募资源时进行双向沟通的基础。这种合作关系聚焦于少数族裔社区,注重尊重、可及性以及扩大参与度。

方法

一个由十名成员组成的CAB分为两组,根据会议时间便利性划分,通过迭代设计过程为CE团队在创建招募和同意材料方面提供见解和反馈。在这个过程中,一个CAB小组审查并完善材料,另一个小组进行测试并进一步优化。对CE团队CAB会议记录的持续分析获取了材料完善以及实施CAB建议活动所需的信息。

结果

这种合作关系促成了招募和同意材料的共同创建,助力191人参与到该研究中。CAB鼓励并协助扩大参与范围,包括社区领袖。这种更广泛的参与向社区决策者提供了有关DNA完整性研究的信息,同时回应了对该研究的疑问和担忧。CAB与CE团队之间的双向沟通促使研究人员不仅考虑与当前研究相关的主题和研究兴趣,还能回应社区关切。

结论

CAB帮助CE团队更好地理解合作与尊重的语言。通过这种方式,这种合作关系为扩大社区参与以及与潜在研究参与者进行有效沟通打开了大门。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8b1/10260344/f95b53216228/S2059866123005563_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8b1/10260344/f95b53216228/S2059866123005563_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b8b1/10260344/f95b53216228/S2059866123005563_fig1.jpg

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